Palliative chemo

Hi Soul sister

What a tough time you are having .

If you click on my user name you can read how my mum’s team navigated a stage 4 diagnosis. Can I ask if it’s his tumour markers that have gone up in his blood ? 
Some people manage better with maintenance chemo at a more tolerable dose but over a longer period of time . If he has not had his scan yet it could possibly be that his CEA is rising but not necessarily had much growth .

We found the oncologist very good in the U.K. . There was a lot of bumps along the way till they got a bit of stability . Tough times for sure and a lot for the person going through treatment but the team were always in the background working away and keeping an eye on things .

My mum had tumour regrowth in her liver within the first three months . They waited a further three months and rescanned  then restarted chemotherapy. It was so disappointing but chemotherapy did achieve something for her . You will see people on the boards , particularly over on bowel cancer U.K. using maintenance chemotherapy. It works for some people .

But there is a lot of uncertainty and support required .

Not sure about the area you are moving to but we found them very efficient and worked hard for her .

A lot for you to process with the house moves too but we are here to listen and help you both navigate his diagnosis.

Take care ,

Court 

Thank you so much, really appreciate your kind words. Yes it was the markers in his bloods. He's on a 'stop and go' chemo regime. We had hoped the stability would have lasted longer, with the move so imminent it puts us in a very difficult situation. Just hoping I can arrange the transition smoothly and as quickly as possible.

Hi Court, I replied to you, but can't see my response! Perhaps I clicked the wrong button! As I said new to this ...

Hi ,

Sometimes you can accidentally hit the report button and it disappears for a few minutes , admin check it and pop it back on . Happens to me all the time but it seems to be there now .

Hopefully Macmillan can give you some support in getting the referral to the oncology department right away and getting GP services registered . A lot of GP services has gone onto telephone calls but the oncologist are very much in person for a lot of the care .
They will take good care of him. Even if he can restart it in France they will hopefully be able to keep the consistency going .

My mum’s oncologist always insisted the scans are much more reliable than the markers so hoping it’s a bit better than suggested .

Let me know if your struggling to get through to Macmillan and I will ask admin for some guidance .

Take care ,

Court