Parent with terminal cancer

  • 9 replies
  • 185 subscribers
  • 1469 views

Hi

I recently joined this group because my mother has been diagnosed with terminal rectal cancer. It’s devastating and I’m finding it so hard to cope.

I am still finding this such a shock. I have found reading other posts on here helpful. It has been good to realise that the grieving process begins at the time of terminal diagnosis. I have been taking each day at a time, focussing on my mother and making sure she is as comfortable and happy as possible.

She had been showing signs of being ill for the preceding  months but had always thought it was related to IBS and severe anxiety (relating to the weight loss). She has now moved into a nursing home.  I am finding it harder now that she has left hospital. She was in hospital for over two months and I felt she was so safe with all the doctors and nurses around her 24/7. There have been many teething problems with the home, making sure her needs were handed over correctly and worrying whether they can meet her needs. 

My mother and I have such a close relationship having been just the two of us after my parents separated when I was very young. She really is amazing and the best mother and friend. I am writing this through tears, just getting all my thoughts written down is helpful. It is some comfort to know this community is here so I just wanted to share my experience and reach out. 

Take care 

  • Hi ,

    Welcome to the forum and I am glad you joined in .

    Its so hard making some of these decisions and I agree with you that the hospital can feel like a safe environment in the circumstances and the home another establishment that you need to learn a new environment, build relationships and the general workings of it when you are feeling overwhelmed and sad yourself . So much change on the go .

    You clearly have enjoyed a very special relationship and with you mum and will continue to be there but it’s important to get support yourself.

    We also have a forum for people who are caring for relatives in a palliative situation .

    It might be of some use to you .

    But please know we are only a chat away if you need someone to offload to . 
    Always here and willing to listen .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hi

    Thank you so much for the kind email. I find these forums so helpful.

    My mum has shown signs of deteriorating recently, not eating much and feeling low. I feel helpless when she says she is miserable due to her symptoms. Is there anything I can do? 

    Thank you 

  • Hello

    i also wanted to ask how do people cope once their parent has passed away. I worry I won’t be able to and feel like I’ll fall apart, I feel so sick to my stomach with anxiety I worry about my mental health. So grateful for forums like these.

    thank you 

  • Oh I understand. I often ponder on this as well . We have a forum for people who are caring for terminally I’ll or palliative relatives . They might be able to share from Their experiences. I will link it in for you . 
    Some days just make you sad .

    Send your mum our love .

    Court 

    Helpline Number 0808 808 0000

  • Thank you , yes please I would like the link. I’m trying to find ways of helping her when she says she feels miserable 

  • https://community.macmillan.org.uk/cancer_experiences/supporting-someone-with-incurable-cancer-forum
    That’s really tough .

    Its an active group so I think you will find support .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hi there..my mum had Parkinsons for many years when she was diagnosed with womb cancer which very rapidly spread abd it became very obvious that she was coming to the end of her life...my mum knew and I think was ready to go as the Parkinsons had destroyed her really and in some ways she embraced it as I think she didn't want to carry in anymore.. those last few weeks were spent visiting her at the care home and watching Doc Martin which was her favourite and also musicals as well as chatting and looking through photographs..she has been gone five years now and at first it was hard but we took comfort that mum was out of pain..but thank god for shared memories to get you through..and you know what somehow you do get through it...xx

  • Hi 

    My mums just been diagnosed with lung and liver mets after 5 years clear from stage 4 breast cancer- I feel your pain I feel lost too.xx