Feeling lost and broken

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Hi there, I'm shell shocked still and this all seems very surreal. Have had pain all down right side of my body for 5-7 yrs. They kept sending me for physio appts. Had a bone density scan and maybe some xrays during that time. Then recently I felt even worse, so contactbdocs as I hadn't spoken to them much about it during covid. Then blood tests revealed low ferritin. They sent me for colonoscopy last Tues and during consultant said 4cm polyp that likely cancer and they need to give me an op to remove. I'm waiting for biopsies of the 2 different lumps and also had a CT scan today. Its been so scary. Today I have to try and tell my parents, both who aren't in the best of health. My head has been spiralling out of control as I've had pain for so long I'm thinking the worst. I've had tightness on one side of neck and sweats too which seem to be symptoms of lymphoma. I'm so worried this is all very advanced. Feel frustrated too that no one has listened to me about the pain for so long. I was about to go on holiday for the first time with my new fiance but have had to cancel all that. 

It's all so rubbish.

  • It can be different thing.You have just started feeling sweaty but I'd did happen in the past five years.If it is then it should an early stage.Just wait for your biopsies and take things from there.

    Love Ghaz

  • Hi. I was diagnosed at colonoscopy and told I would need an op to remove it. Biopsies were taken and then I had scans and further tests for measurements etc

    Mine was 10cm with no spread. So try not to panic. I had pain everywhere and every pain in my head it was the cancer.
    It’s so stressful and a nightmare 
    When was you holiday booked? If possible it would be good to get away before treatment. Even if it’s a short break.
    Is your fiancé supporting you?

    Because telling your parents may be better to do when you have the diagnosis and can be positive with the treatment plan 

    I spared my grown children the details before I had the results because I knew I would stress them out and both happened. My youngest burst into tears and we nearly all started weeping. 
    Im fine so in a way I wish I hadn’t told them. Although my operation couldn’t of kept that a secret. 
    It’s a really stressful time and if it helps keep chatting here

    sending you a hug 

    Ann
     ‍Art

  • Thanks Ghaz, I think I'm so aware I have these odd sensations in several places and have done a long time and therefore my mind spirals... thank you for your knowledge and sharing. All the best Ali

  • Hi there, thanks for your reply Ann... and the hug. The hols was for end Aug early to early Sept. We've cancelled now based on the clinical nurses' advice... but the consultant said 10 days wouldn't affect things clinically. Maybe a few days somewhere might be a good plan prior to treatment. I guess in a way I would rather get on with things though as I'm in a mess mentally from it all. I did tell my mum this afternoon in the end as my Partner felt it best, it's been stressful trying to pretend things are fine. They seemed to be OK - she was upset of course, but ok. 

    Sorry to hear you've been through this too. Yes my fiancé has been great, but I can see he is exhausted from it all already and we have been rather on edge with each other. I've reached out for counselling today and have a couple of things lined up. 

    I'm really grateful for you sharing your experience too.

    All the best Ali

  • Hi Ali

    You really sound like you’re doing well with all that’s going on. To reach out for counselling and to have told your Mum is a huge step to processing what’s been dealt to you. 
    I was a mess but I could avoid people so they didn’t pick anything up until I told them. I was just shut down inside. My husband was showing some signs of Parkinson’s so I was in turmoil. But that’s life and we managed to get through it. 
    I had a LAR it was such a joy to wake up with that cancer in the bin. 
    if you click on names you can read peoples bio when you get your plan it may give you strength and comfort. I’ve had so much help since I joined. It’s knowing there’s others that have been through it a survived. 
    Take care 

    Ann
     ‍Art

  • Thank you Ann, i'm trying so hard and yo yoing in different emotions. It's amazing how you dealt with so much in one go with your husbands situation too. That must have been so tough. Thank you for the tip on how to access bios..  hadn't realised that. Good to see others get through and to understand what to expect. 

    Take care Ali

  • Take one day at a time. You’re at the worst time. Fight or flight unable to either. Once you get your treatment plan you can fight 

    Take care 

    Ann
     ‍Art

  • Thank you Ann, wise words - yes feels like complete limbo not knowing. Take care

    Ali 

  • It is a worrying time I must admit. I had magic eye and they said it's not good news. 2 months later I've had bowel oppertion and now into chemotherapy. Ive found it's easy to chat to people in same situation. My outlook isn't as bad as they said and chemotherapy just making me a bit tired.

  • I think when we are told bad news, we just cannot believe it can happen to us, but it has and we have to deal with it.  I was diagnosed many weeks ago with a bowel tumour and hopefully with treatment and an op I will get rid of it.  I have had chemo/radio treatment which has shrunk it, and now am waiting to see the colorectal surgeon who hopefully will do keyhole surgery to remove it.  So try not to be despondent, I worked in a Doctors surgery for 25 years and saw loads of cases of cancer and the majority of them are now living full lives.  You sound pretty young and I am pretty old so you have an advantage over me. I am sure you will gets loads of support from your fiance and your parents, and of course your friends, that makes such a lot of difference.  I know its not easy but try and take one day at a time.