Need `A Wee Virtual Hug` Today!

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Hi Everyone!

Not having a good day today even though its not me with the cancer its my hubby. He's going back to see his oncologist this Thursday (28th) I think its to find out what treatment route he wants to go down regarding his chemo either the combined or the tablet only. The combined (Capecitabine & Oxipalatin) seem the best bet as I have looked this up (googling again-naughty girl!!) and it says both together are quite effective but then there are the `scare stories` about the side effects. First time round he tolerated the Capecitabine well but I think that was maybe because it was a `low dose` because he was getting radiotherapy at the same time. This time though I think the dose will be stronger. I know no two cancer patients are the same and they will suffer side effects- or not in some cases- differently. Then I think will he be able to do the chemo because before we left his last oncology appointment they took blood from him again and this is how he found out the cancer had come back last time they took blood from him its now going round in my head if its got any worse but for the fact he's up and walking around eating/sleeping normally he seems ok you would think there was nothing wrong with him. My son and his partner both work and we have been looking after our little granddaughter the last couple of days. My son's car is still off the road so my husband has had to run him down to Ayrshire for his shifts the last couple of days really early morning (for 6.a.m)  and his fiancee works in Greggs the bakers and sometimes her shifts start really early (7.a.m) so we have had the little one since 5.a.m. in the morning until about 3 in the afternoon so she has kept us going. I was watching her with my husband this morning and she just loves her grandad (`papa`) and it really got me `welling up` to imagine if he was not here to see her grow up she's only coming up for 2 years old but he said he wants to see her go to school so I just hope that will happen. I have been very tired and emotional over the last couple of days because I know this appointment again is happening this week and I have been snapping at my husband a lot when I know I don't mean to. I have been ok the last couple of weeks but now I know this is coming I'm getting `jittery` again. I know I'm just being silly and I just hope everything will be fine. My husband doesn't understand why I'm crying so much today but whether he does or not I don't know He probably will but just doesn't want to discuss it. I just need a great big hug from you all out there today. Thanks. 

Vicky xx

  • . Big hug on its way from windy lincolnshire - that’s the weather not me! We’re all entitled to down days and the worry of the upcoming appointment coupled with lack of sleep wears you down after a bit. It’s easy to let your mind drift into the future and what may or may not happen but thoughts are not facts so try and stay in the present and enjoy the time with your granddaughter - mine is 4 now but her mum posted a clip of her aged 2 yesterday standing in a wheel barrow saying ‘Stuck’ - such a cute age. 

    As you say there’s no guarantees with the chemo side effects and there will always be people who have a hard time with it and those who tolerate it ok. I’m one of the annoying people who tolerated it ok - in fact I carried working at my part-time office job to take my mind off things. I should have spoken up earlier about the tingly feet as I still suffer now with peripheral neuropathy but it’s just like permanent sunburn so I sit with my socks off on an evening and sleep with my feet stuck out of the bed. The worst part for me was the soreness of my arm from the iv - I couldn’t bear anything touching it for the first couple of days. I went to the supermarket one day to get some fish so pushed my coat sleeve up and made sure I had my black glove on before touching anything cold. I had to smile as I approached the till as I probably looked like a poor Alvin Stardust impersonator! Had a picc line put it after that which was loads better.

    I hope his appointment goes well and it relieves some of the anxiety for you. It’s tough times and it sometimes feels like everything is revolving around the cancer. I think sometimes I was a bit in denial and treat it as ‘just an illness’ but that was my way of coping - pretend it’s not happening and carry on as normal as much as possible. I had the odd meltdown where I wondered if I would ever feel back to being me again but I borrowed the mantra of a guy on here which was ‘This Too Shall Pass’ and it did.

    You know we’re always here for you so keep posting and we’ll get you through this

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Vicky, I think most of us if not all feel exactly like you do. I just found out a few weeks ago of my diagnosis start chemo on aug  9 and I wake up every morning just sick to my stomach , I can’t thnk clearly, the cancer is consuming me  I feel it’s all I can think about at the moment I want it to just disappear. I feel some days how my life has turned upside down literally in a day. Just lastmonth I was vacationing in Cancun and now I’m starting chemo. Talk about being blindsided. But with all that being said I am trying to stay focused and positive I have to . Sending you many hugs and grace  to get you through this week. Hearts

  • All the best with the chemo.you can do this.

    Kath

  • Awe Thanks 'you lot'Hearts️ you all. Yep just don't know if it's a coincidence but since we found out about this new diagnosis cancer seems to be everywhere n u just can't get away from it be it adverts on the TV or in the 'soaps' I watch Emmerdale but had to stop because of the Faith storyline. Then EastEnders brought it in with Mitch's brother so not watching that either. Think the only one with a bit of balance and a bit of humour is 'Corrie'. I'll probably get back to these soaps once these storylines have passed but for now the subject is too close to home. Thanks again for the 'hugs' n kind thoughts for this week. Take Care.

    Vicky x

  • Hi Vicky. I am sending you a virtual huge hug. 
    You’re going through a rotten time of it. I’ve been in your shoes with the TV thing 

    My son was in an RTA and in a spinal unit. I’ve not watched Casualty since. I used to love that program as it was shot in Bristol not far from South Glos. 
    Every time I looked up there seemed to be someone in a wheelchair. Waking up I relived the nightmare.

    I’m so sorry that you are feeling it today. 
    Sometimes you may need to to vent here if it helps It’s ups and downs and we are here to support you. 
    By the way my son now lives in Ireland and we have two beautiful Grandchildren, he walks and is a radiographer. 
    Sometimes things work out and I’m thinking of you. 
    Take care. 

    Ann
     ‍Art

  • Thank you so much Artsie. I just need to get thru this week and hopefully by the end of it well know what's happening. It's just the waiting to find out what his treatment plan will be and when it's going to start. I want it to start 'yesterday'. The sooner the better. 

    Vicky x

  • That’s the toughest part of this whole thing. I found waiting made my mind go into overdrive. 
    Take care. 

    Ann
     ‍Art