I was diagnosed 3 months ago,and was a whirlwind,,my cancer was growing very aggreivly,and ended up with life saving emergency surgery,3 months ago the cancer was as big as my foot and had just burst through the colon,,,after being so ill in hospital for 2 weeks,convinced I was dying
I'm now on chemotherapy and chemotherapy tablets few side effects
Physically I'm healing but I honestly think I've been left with a little ptsd.
All my veins blew after surgery ended up with a central line etc everything so traumatic
I'm constantly scared as it's living in my lymph nodes I've been given a straight up 50/50 chance of it coming back in next 5 years.
Trying to live live to the fullest I can while trying not to scare my adult(sensitive) boys and my 4 grandkids
Does the fear ever go?
Hi Etteric. The fear diminishes over time I found and each clear scan gives you a little more reassurance. My oncologist told me that most reoccurrences happen within the first 2 years and by 3 years things are looking pretty good. There’s always the exception but those were the ‘landmarks’ that I pinned my hopes on - I’m now 5 years clear.
You’ve had a very traumatic experience and that alone will have left it’s mark without the worry about the future. Macmillan has buddied up with BUPA to give free counselling sessions if you think that might be of interest - the support desk number is at the bottom of this post. A lot of people have also found this paper helps with dealing with your emotions after treatment and into the future
Please try not to focus on the 50/50 number - you are an individual not a statistic and these figures are often out of date and include people with other health issues
Hope the chemo continues to go well
Take care
Karen x
So sorry to hear about your experience. Kareno62 has already given great advise . Statistically bowel cancer recurrences drop off after two years unlike some other primaries the longer you are away from the diagnosis date the better in terms of recurrences.
Getting some support is a great idea .
Take care ,
Court
Helpline Number 0808 808 0000
Thank you so much for the kind words and advice ,because they took out 20 lymp nodes to test when they took the cancer out,they found cancer cells in 6 of them,hence the chemo.
I keep forgetting to ask them when I go....how do they test to see if they are turning into cancer,,,,I presume they have to wait till big enough to see on scan.
But I'm only 2 chemo sessions in ,and I've noticed they don't like to burden you with to much information lol.i will ask though as that silly question runs around my brain alot.
They have a robust follow up scanning process . My mum was stage 4 at the point of diagnosis but responded to chemotherapy. After surgery they scanned her every three months initially which was pushed out to six months then a year if no disease is noticed . She has had two recurrences , both detected on her scan , caught early with one in her lung being removed at 8mm . After five years with no evidence of disease she was discharged. It’s very efficient.
They also do CEA blood tests which identify a bowel cancer marker . So lots of back ups and quick action if required .
They will keep a very close eye on you but hopefully that’s all it will be .
take care ,
Court
Helpline Number 0808 808 0000
Hi Etteric
Youve had some lovely advice from Karen and Court
I just want to agree with everything they’ve said and say that you probably need time to process. That experience must have been traumatic most people have a time between tests to process what’s happening and are forewarned before having treatment.
Macmillian offer CBT which can be extremely beneficial with PTSD. I had support through them and it really helped.
So that may be something to think about. There’s a waiting list however they stay in touch and it’s lovely to have that call to check in
Here is a good place to talk too, I’ve found that airing my concerns here I have answers from people that have been through it.
It’s given my family a break from worrying too. In the past when I was anxious I asked here.
Take care
Ann
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