side effects

Edenside. Hi Sandy. Are you having Capox/xelox which is oxaliplatin by IV then capecitabine tablets? Feeling a bit strange is pretty normal - I had wobbly legs and a horrible sensitive arm and that was before I touched anything cold (feels like an electric shock) or having a cold drink (like swallowing razor blades)! I found the first few days were the worst then I started to feel a bit more normal on my days off the tablets then back to the iv and repeat.

I found the cold touch sensation got worse as the cycles went on but got used to wearing gloves for getting things out of the fridge and used to add a splash of hot water to my blackcurrant squash. It helps to keep a diary of how you’re feeling then you can mention it to the nurses at your next session - things like feeling sick can be treated although you sometimes have to try a couple of different tablets to find one that suits.

Ive attached a link to a thread that we started about chemo which might be of interest?

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/bowel-colon-rectum-cancer-forum/221768/chemo-care-top-tips--

Take care

Karen x

sandy

thankyou so much Karen 62 all you info and support was so helpful to me i was feeling really sad and alone . you sound a lovely person who cares about others and i wish us both well in the future . i am under colchester hos and they have been brilliant but you can’t keep asking them every little worry the tablets are Capecitabine and next iv on august 1st xxthankyou for replying haven’t quite got my head around this web site yet x

You’re very welcome - sometimes it helps just knowing that something is ‘normal’. I was given a 24 hour helpline at my hospital and told it was for help and reassurance not just emergencies. 
Please don’t feel sad and alone - we’re a friendly lot on here and happy to share top tips and experiences! There’s also the support desk that you can ring for advice if you’re struggling - cancer can be difficult both physically and mentally but keep remembering that the cancer was removed during the op and this is the belt and braces to give you the best chance of staying cancer free

Karen x

You can ask our helpline staff any questions though , it’s what they are there for ! Karen is a brilliant person and has linked in the helpline number or has it in her reply ! 
They are there for situations like that .

Take care ,

Court 

• I'm on the same just done my second round..side effects are odd aren't they..I get very cold sensitive tingling hands and feet so bad I gave to wear gloves to get milk out if the fridge lol.my taste very odd,I feel hyper and exhausted all at the same time ,,fir me it's the headache and night sweats lol

Hello sandy .the symptoms you mention are very normal . 
I can empathise,I finished my treatment 2-3 weeks ago .it seems everyone is different regarding side effects .I used to wear cotton gloves when opening the fridge etc ..

keeping hydrated and experimenting with drinks to find what you like ..I weirdly loved warm orange juice .

all the best to you as you carry on with treatment & remember you’re not alone 

x

That's so funny ,my friend gas litterally just bought me some cotton cloves too,,much easier than the big wooly ones I was wearing lpl ,thank you x