TAMIS / TEMS / TART

Hi ATS I’m going to tag in Ess and Rose1 and see if they can pop in with any advice. Alternatively you could type TAMIS/TEMS in the search box at the top of the screen and have a read of previous posts? 
I know the tumour has to be less than 3cm for papillon so whether it’s because it’s a stalk type polyp? Perhaps you could ring the enquiries number at Clatterbridge where they do the papillon treatment for advice?

I know it’s a difficult time but bowel cancer is very treatable and you need to be ready to do whatever’s necessary to get it removed. Please give the support desk on here a ring and it may help just to have a chat with them

Take care

Karen x

Hi ATS 

I hope that you have some advice from others that have had the treatment. Sorry I can’t advice I was in for a LAR 

I pleased that you’re reaching out here for answers and staying away from Google 

Take care 

I’ve googled constantly and upset myself and i’m trying not to do it. 

Yes you need to stop.
I terrified myself and none of it was what happened anyway.

Here is a good place to vent or just chat

Its good that you are in control and have chosen your treatment. That wasn’t an option for me I was in as I was close to blocking. So I was in and it was out. 
The treatment sounds amazing I hope that others come along that have had first hand experience 

Have a good weekend 

xx

Hi ATS, I'm having TAMIS surgery tomorrow and MOVIPREP day for me today. Ugh!!

Mine too is very low down, I was recommended  to go via this route to try and avoid the need of a permanent stoma (as temporary stoma is not an option).. However, I have been informed that further treatments or surgery may be needed afterwards, depending on histology results.

For myself,  I'm just glad that things are progressing and moving forward now and  trying to look at it that I'm in a fortunate position that I have this option first.  

Please keep in touch.

Best Wishes x

Hi Rose1, we are both in the exact same situation. I have the dreaded bowel prep today and TAMIS tomorrow.  Like you the only other option is the permanent stoma so it depends on the histology results as to what happens next.  

My surgeon hasn’t the best bedside manner and doesn’t reassure me at all so that doesn’t help but he’s the only one that does the minimally invasive at the hospital i’m under.  

I wish us both the best of luck and outcome.  

Please keep in touch. x

Thankyou Rose1 - hope you didn’t mind me tagging you? x

Thanks for tag Kareno62 and Hi ATS,

I was diagnosed with T2 rectal polyp in December and yes it is very scary and can consume you and the only thing I can say is to take each day as it comes. Did you have any symptoms? Mine was found on my first bowel screen at 60 so I was completely unaware. It is hard to focus on anything else with all the appointments scans etc. You have to find the positives and concentrate on your plan. I was supposed to have resection in February but the surgeon abandoned the op when I was in theatre and decided it could be done by TEMS so after a few delays that's what I had. The margins are clear and I start 5 weeks chemo/ radio tomorrow. I still have days when I'm not sure if it was the right thing especially as my surgeon seemed to still be pointing me in the direction of resection after the TEMS, but the oncologist was very positive with his plan so that's where I'm heading. I feel that there's a lot of pressure on the patient today given informed consent, choices etc and noone is really "allowed" to officially suggest a route, but that's just my experience. Best of luck to you with your journey xxxxx

PS Good luck for today  

and tomorrow to you and Rose 1 xxxxx

Hi Ess, yes i do have symptoms for about 2 1/2 - 3 years now.  I’d been to A&E with heavy rectal bleeding and followed up with my GP and everyone told me I had haemorrhoids and IBS and no investigations were done.  I believed them until I had another bleed back in May which was severe and left me anaemic and in hospital a week.  I’ve had diarrhoea for so long it is my norm.  They found the tumour when I pushed them that something wasn’t right.  I’m told it’s early stage possibly T1/T2 and I was given the option of TAMIS.  

My surgeon is also pointing towards APR but he did say his colleagues would disagree as he is old school. I’ve opted for TAMIS and will see what the results are and it may be further surgery is in my future. Because if it’s position it would be permanent stoma and the removal of my butt terrifies me beyond belief   

At the moment I’m not sure how to get through any of this and want to run in the opposite direction.  

I wish you all the best in your next steps x