Hi

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I was originally diagnosed with rectal cancer in October 21 and began a 6 week regime of chemotherapy and radiation treatment 5 days a week, ending on 15th January this year, then there was the loRaised hands wait to see if the tumour had shrunk enough to operate. After follow up scopes and biopsies, 7 weeks ago I was given incredible results that I was a full responder and the cancer had completely gRaised handse - no operation or stoma required, I felt like the luckiest person in the world - I was cancer free WOOP WOOP Raised hands obviously I was given my post cancer schedule of follow up scans, scopes, bloods etc… 2 weeks ago I attended for my CT scans, they followed up by scanning my chest (some very small abnormalities haCold sweatshown up last time on my lungs), abdomen and pelvis - no results as yet, and attended on Wednesday this week for my scope, unfortunately as my veins were not good before chemo/radiology they are nowCold sweatreadful, and my left arm vein is still completely solid and unusable on top of which I had been asked to get bloods done for something else on Thursday so asked if I took the viles and paperwork to Cold sweate hospital on Wednesday could I ask as being cannulated for sedation could they use that to take bloods to save more difficult needles, my surgeon agreed and tried numerous times to cannulate my rigCold sweat arm and both hands without success, so not only was there no blood samples there was no sedation and yes you guessed it there seems to be a local recurrent cancer- obviously I need confirmation froCold sweatthe biopsies again, but know from both the surgeon and my bowel cancer nurse that they believe it has returned- I can’t believe in 7 weeks I have gone from the moon and stars to the depths of the ocCold sweatn. They have requested an urgent MRI and are already planning surgery around the end of August, so many if buts and maybes again….. I have I believe to have a port put in my chest to help with vein Cold sweatsue especially as now I have had all radiation I can at present, the likelihood is that I might require IV chemo, and they are trying to rule out metastasis so need the results from CT, biopsies andCold sweatRI before a plan can be put in place… I was always so afraid of the op and stoma and now it just feels 100 times worse with even more difficulties to overcome Cold sweatCold sweat

  • Hi . I’m sending you a big virtual hug to start with - what a disappointed to go from complete response to where you are now. Hopefully the scan and biopsy results will come through quickly and you can get a treatment plan in place. Are they hoping to give you some chemo before your op or does that depend on your test results?

    The port in your chest will be such a godsend. I had a picc line (which goes into the arm) as my veins were shot to bits by the time I came to my post op chemo and it made life so much easier for both the chemo and the bloods that they had to take. Do you know what operation you’ll be having? I know it’s a worry but your team sound to be moving quickly to get a plan in place and you can get rid of the nasties once and for all. I know you’re disappointed but having the operation is the gold standard treatment and we’ll all be happy to help and support you through this.

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thanks Karen, think chemo is after op. I appreciate your kind words and understanding x

  • Hi Neenie

    What a shock. You must be finding this hard to process. Some people say it’s like a roller coaster ride think yours is the daddy of all rides. 
    I hope that you have your plan asap. Keep us updated. Don’t worry about a stoma I know that’s easy to say but honestly I dreaded it and now I forget it’s there most of the time 

    Ann
     ‍Art

  • Thank you I appreciate your response