Just here for some advice

FormerMember
FormerMember
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Hi everyone,  I'm new to this site and just wanted to know if what I'm experiencing is normal and if anyone has any suggestions on the best way to cope!!

A bit of background on myself.....

I was diagnosed with colon cancer in Dec 2017 aged 46, it was classed by my surgeon as a grade 3 and it had invaded multiple lymph nodes. The surgery was a success yet I still had to have 6 months of weekly chemo. 

In the July of 2018 during a routine scan they found 2 tumours on my liver, it was explained to me as secondary cancer due to the lymph nodes being invaded by cancer. I had these operated on in the September of 2018 and had 25% of my liver taken. A couple of complications happened after this surgery and unfortunately after I'd been discharged (which was 36hrs after surgery). I had a massive haematoma which required a week stay in my local hospital with a drain and then after being discharged from there I fell very ill 3 days later and was yet again admitted and they found a huge abcess on the liver op site. Another drain was put in situ, I was in hospital for 2 weeks but the drain stayed in place for 6 weeks.

That's my cancer journey.

Prior to my cancer diagnosis I very rarely bothered my doctors with pain problems, I just got on with them and they knew that if I did go down that it was because of something serious that I could no longer cope with.

My question is.... is it normal to panic after cancer that any severe abdominal pain is the cancer returning???

I'm going out of my mind as to how much I'm contacting my Dr's for different issues and I feel like I'm becoming a nuisance. It's playing havoc with my mental health and I don't know which way to turn anymore. Can anyone shed some light if this is normal??? And if they have any tricks on how to get over it please.

Thank you 

Leda

  • Hi, , in short, yes it is normal! I keep looking at my poo and thinking oh, should it look like that! But I have LARS and things are subject to change without notice. I just have to think, that the last scan was clear! It can get difficult to convince myself on occasion though.

    But I hear you about the doctors. I unfortunately got covid a couple of months after finishing chemo, and still have long covid. So I too am bouncing back to the doctors, well by phone only, quite often, as the covid picked on the chemo weak spots and I'm getting very very fed up of the fatigue and breathlessness. This after 2+years. So I hear you. But keep asking them, you have a valid reason. Probably more so than long covid, as at least they have answers for cancer.

    I did find the Macmillan counselling service very helpful, so I suggest that you give them a ring. 

    Else all I can do is send you a supportive (((hug)))

  • FormerMember
    FormerMember in reply to Gemmary

    Thank you for replying. I had some form of covid also this year, I'd been so bloody careful and then bang it found its way in. It knocked me about for a month and I swear that the fatigue that I get on a daily basis is because of it.

    I only speak to my Dr's via the phone but I have been seen twice by Dr's that know me and my history (not these locums that don't know you).

    I'm just fed up of it, how can they possibly diagnose anything over a phone???

    I have spoken to some sort of counselling service on the phone this morning, they are referring me to speak to someone.

    Thanks again for replying 

    Leda x

  • https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf
    This is one of  s favourite articles . A lot of people raise the same issues as you have stated . 
    Hope it helps some .

    Court 

    Helpline Number 0808 808 0000