Bowel Cancer and bowel removed and now have a permanent stoma

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11th May I had the operation and now at home in recovery. Is it normal to feel tired all the time? I am 68 years old and usually an active person but it has been 8 weeks today and I still feel weak and sleepy.

  • Hi Neal

    I had the same operation on march 16 and it took a lot out of me and I still feel tired now it's a new way of life that we have to get used to I'm also on chemo for liver cancer but fighting all the way hope you find your energy again and all the best for you x

  • Hi Neal

    I had a LAR August and my surgeon told me before that it was a long invasive op and I would take at least six months to feel anywhere near as I good before the operation 

    I thought well once the cancers out I will be fine. 

    I was wrong I learned the hard way. So my best advice is potter about doing things then sleep. I went shopping and pushed the trolley afterwards I slept and felt frustrated. 

    Slowly I found little power naps really helped me recover. I followed the exercises that I was given and it wasn’t long before I was eating out and enjoying life allowing for my power naps between 

    You are doing well and remind.

    Slow a steady wins the race.
    Like the tortoise and the hare. We are tortoises but still win the race

    Hope this gives you some encouragement.

    Take care 

    Ann
     ‍Art

  • Hi Artsie Ann,

    Thank you for your note and your explanation does give me more encouragement than I was given by the hospital but that is not criticising the hospital because they were magnificent and unbelievably brilliant in looking after my initial recovery.

    The detail you have noted is similar to what I am going through. I worked on the garden over the weekend and felt tired but it was through lack of fitness and not all about the operation.

    I appreciate your feedback.

    Many thanks

    Neal  

  • Hi Neal

    I had the lower half of my bowel removed and a permanent stoma (I call him Eddie Stomart) in feb 21. I felt tired a lot of the timebfor many weeks, especially after doing anything remotely strenuous. I drove after 6 weeks but the first short journey of 7 miles round trip knocked me for six so I left it another couple of weeks and then increased gradually. If you take things easy and build slowly, youll be fine. A positive mindset helps and learnungvto live a new way of life can be easier than we first think. Im back to full strength and feeling fitter andbstringer than i have for years and have welcomed Eddie into my (Very normal) life.

    Good luck, keep positive and thanks for amazing NHS!!!!!!

    Richard 

  • Agreed Richard 

    To be honest my life with my stoma is so much better than when I had Cancer. It drained the life out of me. 
    Enjoy this lovely weather. 

    Ann
     ‍Art

  • Hi Richard,

    Thank you for your feedback which is very encouraging and a lot of what you have described I have experienced. I aim to start playing golf at the end of July which I will take it steadily at first but it would be great to see my friends again after such a long time.

    Best regards

    Neal 

  • Thanks Artsie (im guessing you're a creative one ?) Im enjoying my up-cycling and selling stuff at antique and collectible fairs, and of course my caravan on the Norfolk Coast, which is the silver lining to the cancer cloud and was bought with the proceeds of an insurance policy Blush 

    Keep strong and smiling 

  • Good luck with the golf Neal and yes it will be great for you to get back to your friends and the 19th hole for many tales of missed (and holed) putts etc (I used to play but stopped some time ago) 

  • A poem that has just come to me (i did others in the recovery period last year)

    I watch
    As a mole emerges from a hole in my tummy
    I examine the pooh
    For signs of blood
    Or goo
    Theres none
    Does this mean that I've won
    Does this mean that the dread
    In my head
    Can be put to bed
    Can be ostracised
    No longer my body despised
    The sense of relief
    From the grief
    I'll survive
    Feel alive
    I'll have a future without pain
    So much to gain
    A brutal op
    Put a stop
    To a terminal diagnosis
    A hopeless prognosis
    And now a sunny dawn, a life worth living
    And many more days without misgiving


    Inspiration comes at the strangest times!! ď¸Ź