Umm - lost, scared & can’t stop crying

That’s what we are here for  so a big welcome to the forum !

It is still very early days in terms of recovery and I think you will see some improvements in the coming weeks .

In terms of nutrition initially it’s more what they can tolerate so making each mouthful count . You might like to ask his team to get a dietitian involved to help you . However we got my mum the complan chicken soups and that eased our minds in the first few weeks .  You can get them at the health section in supermarkets. Some of Marks snd Spencer’s Yogurts are packed with calories and easy to get over .

Gradually they gain some strength . However you sound quite traumatised by the shock too so I would encourage you to phone your GP to share how you are feeling . I did and it was a great help that strengthened me considerable .

We also have a helpline here .0808 808 0000 and they will be more than happy to chat through some of the recovery aspects . 
They normally give around six weeks before they would consider chemo anyway but his surgeon should give him the pathology report before then . If required his case would go to a Mylti disciplinary meeting and they would collectively decide the next step in the treatment pathway .

If you need to get in touch with his consultant you can email the secretary and they will make contact with them .

Hang on in there . I was shocked at the start but all of a sudden they suddenly turn a corner and it eases .

Take care ,

Court 

Thank you so much for the reply. I feel so lost in this process & totally unprepared. Your words mean a lot. Thank you for caring xx 

, sorry to hear of your loss. ((Hugs))

So sorry to hear about this. ((Hugs))

I’m in conversation with consultant . He’s waiting Post Mirtem results - he wasn’t expecting it either. I’m floored with grief and the thought I should have acted more quickly Thank you for replying - this is so hard xx 

So sorry to hear . Remember Macmillan are there to support you .

Very distressing circumstances but you did act and very hard to separate what is within the limits of normal recovery and abnormal . 

Here any time you need to chat .

Court 

Nadia,

Don't blame yourself. I felt my husband was pushed out of hospital the first time with very little back up. When he had throat cancer 14 years ago we had check ups every week, but it wasn't like that with the bowels. If I hadn't got him through throat cancer I might not have acted as quick as I did. The whole thing is a very steep learning curve. We are not trained nurses. xxxx 

That s so true - I’ve been thinking if I had been a Nurse - would I have acted more quickly maybe - but I’m not. I have a feeling my husbands deep dread of A&E was some sort of premonition - that if he had to go - he’d die. And he did. 
waiting post mortem results . Told the consultant how unhappy I was with no ‘out of hours’ help. If I have energy, I’ll pursue this fiasco in the hope it changes something to save someone else.

I think your husbands deep dread of hospital might have contributed to his heart attack, but there was no option, like us.

I quite agree about this issue of getting help at weekends. When it was us, I knew it was no good trying to get a doctor. I had actually started to ring 111, when my husband suggested ringing the ward. Luckily I got through straight away, and a kind nurse said to go to A and E as he couldn't admit anyone without a doctor. I think the whole issue of getting a doctors help needs to be overhauled. We have just lost our GP as he was not happy diagnosing over the phone, and has resigned. He wanted face to face appointments again. I wonder how many other doctors feel this way? I applaud him for sticking to what he believes in, but we have lost a good conscientious GP.