Bowel cancer shock

Hi . Please have a look at my profile (click on my name) and you’ll see that I had similar problems. It’s normal to pass a small amount of mucus from your back passage even with a stoma but it shouldn’t be excessive and I would expect daily output through your stoma. Have they scanned you to check that the leak has finished? My chemo was delayed because the oncologist felt I wasn’t well enough to handle it so please dont worry that you’ll be forced into it before you’re ready.

You’ve had a pretty traumatic time and its only when you stop and sit that the shock and distress creeps up on you. We’re here to help and support you through this. There’s lots of help for your stoma on the Stoma Board

https://community.macmillan.org.uk/cancer_experiences/ileostomy-and-colostomy-discussions-forum

Please think about giving the nurses on here a ring for a chat. They’re available 7 days a week from 8-8 on 0808 808 00 00

Time is a great healer and things will honestly get better. I remember going through a whole mixture of emotions and there were times when I thought I was never going to feel like ‘me’ again. I’m so glad you’ve reached out and please keep posting

Take care

Karen x

Hi Karen

Thank you so much for replying and thank you for sharing your experiences. It's great to not feel so alone.

I think I'm still in shock and I'm finding it hard to talk about it. It happened so quickly and it makes it more 'real' when I say it out loud. Sorry if that sounds weird/silly but...lol

I will definitely think about talking to the nurses. Thank you for suggesting it.

I will also hopefully come back on here now I've finally sent my first message.

Hopefully speak to you soon.

Thank you again for replying.

London

I wanted to reply to you about the shock. My Mum was well at Christmas.  After feeling unwell in early January, we are now at the point where she's had a diagnosis, a stoma fitted  and her cancer,  which has spread, has been found to be inoperable. Now it's palliative care only.

I still feel in shock and we found most of this out in mid February. I'm not surprised you do too. 

Do try and reach out to your stoma team. They are there to help you and its important you tap into that as it will slowly help and you will get advice and tips on how to be more comfortable. 

Do stay and share on here. We can hand hold from afar.

Kezzie100

I'm so sorry to hear about your Mum. But thank you for sharing her and your story. 

I feel better finally talking to people on here. It took a while to pluck the courage but I'm glad I did. I will check in here from now on and I will talk to my stoma nurse.

I'm sending lots of love to you and your Mum. Keep strong.

London

Thank you. Let us know how you get on.

X

I will do. Please do the same.

X

Big welcome from me too  glad you reached out and people with experience can support you .

Take care ,

Court 

Kezzie100

Big welcome to you too . Not sure if we have spoken before but hope your mum gets a good plan .

Take care ,

court 

Thank you Court

Much appreciated. 

London