Hello

Hi @Jocar and a warm welcome to the board from me. There’s been a few new people lately so you’re not alone. Presumably you’ve had all your scans now and the team will have met and decided on a treatment plan for you - things will honestly feel a bit better once you have a plan in place.

Ive attached a link to a booklet that I was given at my first meeting which will give you a bit of a heads up. 

bowelcancerorguk.s3.amazonaws.com/.../YourPathway_BowelCancerUK.pdf

Bowel cancer is notoriously slow growing but very treatable and we’ll be happy to help and support you through this.

Take care

Karen x

Hello. 

Same happened to me in August last year. Over the last 6 months I've had an operation to remove the cancers and now having chemotherapy.

My experience has been

- to begin with time seems to go slower and its hard to think about much else

- once there is a treatment plan in place there are landmark dates / events to aim for and things begin to "normalise"

- I tried to stick in so far as possible to things that I was doing before the diagnosis

- whatever the treatment plan agreed the NHS will deliver it. I've been hugely impressed by the coordination between the various departments

- I've been surprised how quickly its possible to adapt to things that you never thought you could. I suspect you will too.

Hope this helps a little

Cheers

Ian

Hi Jocar,

Just want to welcome you to the board too but sorry you find yourself here. Almost everyone seems to agree that once you get a treatment plan in place you feel a lot better, hard to believe at the moment I know.

There’s lots of advice and support on here, everyone is at difference stages of their journey if you click on the icon at the side of their name it’ll give you their bio.

Keep posting.
Take Care
Net77

Hi Jocar

I just wanted to say hello and wish you well with your treatment plan. 
Any questions fire away there’s so much support here

All the best for your meeting.like others have said,its much easier when you have a treatment plan and know what is happening.

Do click on peoples names to read bios and see hiw they got on with their journeys through this

Kath

Thank you everyone . I’ll report back after my meeting on Friday 4th March.

Hi There,

I am old and daft, but I’m really struggling with this MacMillan stuff.

I think I’ve managed to set up two blogs but can’t find them, I have no idea how to add to them

I’ve looked everywhere for instruction but have failed miserably.

i read somewhere to press activity but can’t find a word activity in the blog area anywhere .

don’t think I’ve ever come across a more un-user friendly site, especially to the older generation. 

we’ve not all been brought up on PC’s.

I’m not even sure who I’m posting to here

maybe I should just give up on MacMillan.

sorry for the rant but have sat trying to get a grip with the site but nope I’m just to thick.

Thick and cancer… No hope for me I guess 

bye

Hi Jocar

If you click on your name you will go to your profile page. Activity is there and blogs

Thank you Ian, yes it helps 

We’ll done Artsie Please don’t give up . I’m not very IT literate despite working in banking for 30+ years then an office for 6 years - my husband (my bricklaying 5 year younger toyboy) knows way more than me! As Ann says it looks to be on your profile page. If you look under your name then Activity shows the posts that you’ve started or responded to on the board. Next to it is Blog Posts which shows blog posts that you’ve made. At the top under the Online Community heading is Blogs which shows all the blogs on the Macmillan board. There’s also a Technical Support tab with hints and you can message with a specific query if it’s not covered.

Just found this too which looks helpful?

community.macmillan.org.uk/.../how-to-use-blogs