Hi everyone I am 57 years old
OK so after being treated for another ailment for 6 months a nurse from my doctors called me and asked why I have I not had bloods taken for this. My reply was I have no idea but I did ask the doctor so ask him. Anyway I had bloods taken and that Friday got a call from another doctor saying there was a problem and more tests were needed. 3 days later I was rushed into hospital with severe stomach pain. CT scan showed a mass and 2 days later I had 4 feet of colon removed and part of my small bowel. I was operated on by a robot in Portsmouth by a superb surgeon and although the operation was successful I was told the next steps were only to give me more time. This was early November. Saw the oncologist in December who is great and a straight talking Irish woman who told me I had 12-18 month with Chemo. First 2 times I was on a 2 hour drip followed by 15 days of tablets which gave me angina symptoms so they have taken me off those and just had a new combination that do not have cardio side effects, more sickness and Diahoria in week 2 which hopefully I will be able to deal with. Good news is after a recent CT scan the Chemo I was able to take has kept the cancer dampened down. So for me its a waiting game as to when the cancer learns to push back against the chemo but to have as much Chemo as I can. I will have a break as I want to travel to the Maldives and Las Vegas without my PICC line, which to my surprise they said would take out and put back in if I wanted more treatment when I come back from my travels. I must say the surgeons, intensive care (8 days) cancer ward nurses when rushed back in with chest pains on 2 occasions have all been superb and so kind.
Well that's my story to say hello with and will interact on this site as much as possible as I still feel a newbie to all this and in time might be able to help others which experiences of my journey.
Welcome to the forum . I have just had a chat on your other thread but very pleased you have joined the forum . I am a relative not a patient but been here since 2010 . My mum was diagnosed as a stage 4 patient back in 2009 , yet here we both are !
So good you are reaching out and connecting with others going through the same process .
I found it helped strengthen me to familiarise myself more and in turn was able to share that with my mum .
If you click on my user name you can read her story !
I can see you have travel plans and already working out the balance of treatment around life !
Sounds like a good balance has been struck already !
Court
Helpline Number 0808 808 0000
Thank you Court. Yes the travel plans are to give me a target and give my wife some lasting memories to add to the ones we already have but for me doing some bucket list things. Also my consultant said having goals is important and I have plenty I still want to do
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