Hi I’m late coming to this group. After being treated for haemorrhoids for 3 years(including a wee op) with no cure I finally got a colonoscopy in Sept 2020. They found a large polyp which after waiting 10 weeks for diagnosis they mislaid my file.
was told it was cancer and an op was needed. Had a right hemicolectomy in Dec 2020. Thought it was going to be keyhole but it turned out to be a large scar. Anyway I progressed ok took things slowly and recovered well. Biopsy results was early stage 3 as out of 12 nodes 1 infected. chemo was offered. The thought of side effects scared me more than the op. Started in February on Capacetabine Sp? Tablets. Apart from feeling pretty tired and a few urgent toilet issues all was ok. Was happy not to loose my hair. Now 6 mths post chemo had a few niggles and of course every niggle is a panic. But on the whole physically I’m Ok.
But now and the reason I’m here looking for advice I’m feeling worse than through the whole episode. ( apart from maybe the initial diagnosis). I feel absolutely lost, if one more person tell me you have to stay positive and move on Any issues I’ve had I’ve been told oh your well past chemo nothing to do with it phone your doctor if your worried. I know covid has changed things but I don’t feel I have any support hence coming on here. It’s a daunting time thinking about what the future will be but no one knows that I know. The other thing I was told I’d have follow up blood tests scan colonoscopy at 6mths but not getting scan till July no word of camera or blood tests. I think it’s such a busy time of appointments treatment and then nothing all feels a bit surreal.
Sorry a bitof a ramble but after reading some of your posts I feel it’s a good place to get support and read your stories. I feel lucky compared to what some of you are going through.
Anyway thanks for reading and hope you are all having a good day.
Hi Redhead
Im on the move at moment so I will chat longer later. Just wanted to say hi. And No you don’t have to be positive all of the time.
Sorry this is short.
Click on my name to read my bio. And others.
Ann
Redhead Please read the link court has put up, I feel you will find it very helpful.
Anyone here is happy to help if they can, and yes this is a period of time when I was lost too. The crutch gets taken away, and you just wonder.....
I'm also a Charlie Mackesy fan!!!! Take care
Hi Redhead
You’ve had a rotten time with your diagnosis sadly like lots here. Waiting for your tests is really stressful. I think my cancer follow ups are now by phone. It’s a strange world that Covid has created. I’m sure the staff must stressed too. You could give them a ring to see how things are progressing.
Being told to be positive is an excuse for Im not interested!
Here we know how it feels. The ups downs twists and turns.
Yes you’ve done absolutely brilliantly but cancers not something you can forget that quickly. Every twinge. Is that it!!!
I remember when I first joined here I felt guilty for feeling the way I did I felt ungrateful.
One of my first replies was so refreshing it said something like
Well you don’t have to jump out of bed bouncing with Im so lucky to be alive.
That helped me so much. I hope it makes you smile
Tske care and keep chatting here
Ann
