Hi new here struggling my dad went into hospital between Xmas n new year for a week diagnosed heart failure clot on lung and possible cancer but unsure where. Sent him home within 3 days went from doing everything himself to not being able to do anything went back in with potential internal bleeding. Got covid been on covid ward for 18 days. Since Sunday has a lot of melena in his stools had an endoscopy today it is clear he is going for a ct colonogram in morning to confirm the colon cancer but say he is not a candidate for surgery and it has spread to his bones. He has been moved from the covid ward today so we weee hoping to finally visit as he has been depressed very confused and muddled but the ward he has been moved to is a closed ward no visitors as had an outbreak of covid on Monday. He has to have 2 units of blood last night and has had a major bleed this afternoon so is having another blood transfusion tonight. It is so hard not being able to see him and hold his hand so he knows we are here.
Must be a blip I’ve copied and added it to this
Hi Adlek
Im so sorry that this has happened to your Dad and it’s so crushing for you not to be able to be there.
I don’t know how to help but wanted you to know I’m thinking of you.
Keep chatting if it helps.
sending you a hug
Ann
Thank you Artsie. So hard called the new ward he has been moved to last night to check on him and ask if he has been started on his blood transfusion and she said we’re not aware of it and is after hours now! When called this morning said had settled was awaiting his breakfast as just doing breakfast rounds I asked is he not nil by mouth clear fluids only? As due a CTColonogram at 9 this morning? She said sorry not had a handover with this yet will need to check. They have had him on clear fluids only since Tuesday evening on covid ward with him having endoscopy yesterday and in prep for procedure this morning just gives us no faith with this ward he is on as it is the same ward he was on at Christmas and they gave us no info to what he has wrong when they discharged him we collected him and waired for a doctor to come and explain everything but got told by a nurse you have his meds and can go now so had to read his discharge letter to get some idea of what was wrong.
Sorry me again what a day :( after knowing nothing since dad was on covid ward yesterday called again after 2 to be told he has just gone for his scan as running behind call back after 3. Called back later he had just come back on the ward and doc was going through dads notes as not met him yet with only being moved to ward last night and didn’t see him on rounds this morning as wanted to wait till had his scan. Was told doc will assess him talk through everything and answer any questions dad has I again explain he struggles with info gets muddled and mentally doc on covid ward decided not to discuss anything with him as he not in right place nurse said call back tomorrow afternoon when doc seen dad again and doc will speak with me. Doc rang me and said he doesn’t even realise he in hospital so not discussed with him but surgeons say he not candidate for surgery also scan he had over Xmas and was discharged shows a large rumour on his spine concerns are his blood clot on lung as can not put him back on meds due to melena bleeds from colon cancer but until scan back not no how much it has spread. I was told I need to be aware he may have a major bleed at any time I just want to go hold his hand but because they have moved him to a closed ward still no visitors as now it is a covid ward wish they had kept him on ward he was on although was the covid ward as he got covid and was quiet poorly it was on the ground floor so we could fo to his window
Oh goodness. so sorry I’ve just picked this up. Not sure why think it’s my fault I didn’t bookmark.
Im so sorry this is awful you must be beside yourself with worry.
Is he suffering with symptoms of Covid and needing help?
Im not sure how long Hospitals have their policies for their covid isolation periods now I know it’s changed recently by the government
So that would be worth researching.
Or maybe once he’s Covid free he can go back to his ground floor room.
Ask if you can have a nominated visitor in PPE now daily I would really push for that!
I’m sending you a massive hug. I’m thinking of you.
Try and rest and hopefully you will have more answers tomorrow
Ann
He has covid just after he went into hospital so has gone passed his 10 day stage when they step you down which was a week last Sunday but because he still needed oxygen they kept him on the ward until off the oxygen and more stable so could then investigate his internal bleeding which we now no is the colon cancer as they said had cancer of the bones but not sure where his cancer was until yesterday they finally stepped him down on Wednesday from covid ward as had been off the oxygen for 24 hours and were waiting for a bed possibly on the gastro ward but was told last night they had a bed on the elderly male patients ward but apparently this has now been turned into a covid ward they fantastic thing on the covid ward they got to know him ans would sometimes go sit and hold his hand. Thank you artsie I will deffinatelt push for one of us being allowed to go see him I tried today but the doctor said he stable for now and not her decision she will ask the ward nurse if anyway one of us can go in for a while thanks for the hugs means a lot we not told my mum yet as she is abroad and will be devastated they been divorced 30 years but still best friends will try get some sleep thank you just we don’t want him to be on his own and it’s a 40 minute drive to hospital I will look into all you advised about care home over the weekend take care and again than you for listening to me x
You need some rest. I am here for you. It’s sounding more positive that he’s breathing unaided.
I would push hard for visitation rights. Im not sure they will say no I think they’d welcome some loving relatives it must be so hard for the nursing staff
My mums place was a similar to a hospice. Im not sure what it came under my sister was in the trade so she took charge. But it had various high dependency residents. Some were very young.
It’s worth talking to the hospital they will know if that’s possible Anyway most important thing is to get him a visitor and take him in some things he likes and hold his hand
Hope you have some rest and good luck tomorrow with the visiting rights
Ann
Hi Artsie no joy with visiting was told hopefully next week they will be an open ward for visiting can only allow u on of end of life I called this morning to be told to ring back after 2 and could give me an update. Called this afternoon and nurse said consultant was going to call me regarding dad. Consiltant said still waiting for results but has had a small melena bleed in night and a larger fresh blood bleed this afternoon waiting for bloods back to see if needs another transfusion but we need to prepare ourselves as could have a major bleed at any time and he is not a candidate for surgery or ICU all they could do was palative care unless he goes down hill quickly then would need end of lifecare but until his results are back unsure where the internal bleed is coming from although they suspect his colon cancer so hard she knows we have not seen him in 3 weeks and we called him tonight he is so confused he asked where he lives where he is at moment and said needs a lift back can we fetch him? Or does he need to call a taxi so from what doc saying I think there is nothing they an do for him as he has other underlying illnesses too and they are worried about his clot on his lung
What a nightmare
I find it confusing that he’s only allowed a visitor if he’s end of life care and he’s not end of life but they’re worried that he’s going to have a bleed
It must be making you really anxious.
Covid has a lot to answer for.
It’s making it impossible for loved ones. .
Do you have support?
There’s nothing I can say or do, all I want you to know I’ll be here if you need to chat.
Take care
Ann
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