Hi all!

Hi Clarita192 and a warm welcome to the board. I’m so sorry to hear about your stillbirth and cancer diagnosis - what a horrible time for you. It’s good to hear that you feel well in yourself but please consider seeking help if you start to wobble a bit - you’ve been through a lot.

When do you stop worrying about every little thing? I think the worry is always there but gets further and further back in your mind as time passes and with each clear scan. 

You might find that your bowel settles down over time but have a look at page 4 in the booklet below and see if the bile malabsorption might be affecting you?

https://bowelcancerorguk.s3.amazonaws.com/Publications/RegainingBowelControl_BowelCancerUK.pdf

I’ve also attached a link to a booklet about bowel cancer in young people which covers Lynch testing 

https://bowelcancerorguk.s3.amazonaws.com/Publications/YoungPersonsGuide_BowelCancerUK.pdf

The nurses on here are available 7 days a week from 8-8 if you ever want a chat on 0808 808 00 00.

Glad you’ve found us here - there’s a lot of experience and support

Take care

Karen x

I am the same every time the phone went with a 0800 number and I got a letter  I would just look at it .Then there's the ache and Is that Cancer back It took me a while to get used to it but it got easier  I got The Tumour cut in and the reversal operation done in 3 months 

Take care of yourself  You will get through this and get back to normal ..Alaine

Hi Clarita, so sorry to hear of your stillbirth and then cancer. I understand that every pain niggle in your body is a worry. I had sciatica and thought it had gone to my bones. I would just let the team at your hospital know. My own GP sent me for a mri scan and to be honest the sciatica was a lot better by the time I had the scan. I’m still at the stage where I will report anything. Sending hugs xx

Hi Clarita192

This is a good place to get support for your Cancer worries that are normal. I’m the same every twinge its in the back of my mind. Like the others have said that time will give us confidence and great links from Karen  

I’m so sorry for the lose of your baby. That’s horrendous I really hope you’re having support for it. My daughter lost her baby this year and as a trained psychotherapist she knew the right channels for help. Slowly she was improving but now she’s got Covid 

Please take good care of yourself. 

So very sorry to hear your news - from one so young. With regards to your bowel movements, I had a left Hemicolectomy in May '19. I would say that it took me at least six months before my bowel movements settled down....and even now, eggs & coffee can give me diarrhoea. This Op. chops off a large length of your Colon - & therefore, food intake passes through your system much more quickly than before.

With regards to worrying about other niggly pains....I think this will take a long time to come to terms with. You have endured a major operation, which will have affected your emotional equilibrium. I'm sure that these fears will lessen over time....as they have for me.

Wishing you all the best

Marianne 26

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

Hi Clarita192

Just want to welcome you to the forum . I have included a leaflet others have found helpful whilst moving forward from active treatment.

I think you have been through a lot and sending you much love .

One point about stats make sure you get them to fully explain the risk aspects to you . I completely misread the increase risk factors for myself with a relative having previous bowel cancer and focused on the % increase . What I did not realise was that when that was translated it actually was still quite low . I just happened to mention it recently to my husband and he realised I had missed a part . Not only that I have thought it for the last decade ! 

In terms of going forward , my mum was actually a stage 4 patient at diagnosis and the robust scanning program has allowed them to keep this safety net around her and quickly sorted any issue out before it became a problem . It has been a life saver over the last 12 1/2 ( 1/2 matters) years .

Take care ,

Court 

Hi Clarita192 wow you certainly have been through a lot these past few months Canxiety totally understandable we do all become far more aware of what our bodies are telling us. 

Having had breast cancer 8 years ago and now CRC I can assure you for most of the intervening 8 years you do gradually put those worries to the back of your mind and my CRC had no symptoms anyways and was found due to a government FIT kit..... scan results will usually bring anxiety to the fore again its like looking into a crystal ball of your future life!!

.. cancer is such an insidious disease and in virtually all early stages does not cause pain and certainly not a sudden onset pain, so my advice whilst you should listen to your body and be intuned try not to assume every new ache and pain is going to be a concern but obviously always mention it to your treating drs.

I too had a R hemi in October and unfortunately the part of the bowel they remove in that op is the part responsible for water resorption so it can mess with your bowel patterns for sure but w/o chemo to contend with I'm sure your issues will settle down soon 

Wishing you all the best 

Hi Parky2170

Just thought I would catch you before I head to bed !

Court 

Hi court. 
just waking  up :) 

had round 2 yesterday .gonna try and play 18hoLes of golf today.  Might be a tad hopeful