Capox chemo side effects advice

FormerMember
FormerMember
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Hi all I found out this week that they want me to start capox in Jan and although i am feeling positive about the treatment ahead a slight worry is decending over me about the side effects especially as google can make your mind spiral. Im really concerned on how the side effects will cause a disruption to daily life, a week after my diagnosis my partner gave birth to our second child and i am worried that the chemo will put added pressure on my partner to look after our two young kids. Has anyone got advice on what you can do beforehand to try and limit the side effects or likelihood of getting them? The hand tingling, brain fog/chemo brain and fatigue worry me the most...sorry for the ramble. Any advice would be great and wishing everyone well!

  • FormerMember
    FormerMember

    Where to start… I think you have to expect you will have side effects and if there are family members who can help with child care to get them involved?

    My husbands first cycle, the first 4 days he had cold sensitivity, tiredness, then as the cold sensation went he had pins and needles and first bite sensation, brain fog, the tiredness and lack of sleep continued, then diarrhoea on and off for the rest of the cycle. They are reducing his dose for the next cycle. 

    You could ask the oncologist about the dose but their concern will be only to kill the cancer cells and make sure you’re around for your kids. If you can get support looking after them I think that’s best? Chemo is only a short period and hopefully once it’s done it’s over and you’ll have time to make up with the kids.

  • Hi  and welcome to the board. My first advice to people is always to stay away from google as there can be a lot of misleading information and it can make your head spin. Chemo affects everybody differently so there’s no guarantee as to which side effects you will get although the cold touch, sickness, diarrhoea and fatigue are probably the most common. The nurses will keep a close eye on you during your treatment and there are lots of pills and potions to help combat any issues. If you’re struggling with sickness then it can be worth trying a different antisickness med for example and they may reduce your dosage if it really is unmanageable. 
    It’s worth keeping a little diary as it reminds you of any side effects plus you will probably find that a routine develops eg, you feel tired for the first couple of days but feel fine on your week off so you can plan something nice for that week?

    Ive attached a link below to a thread that we started with top chemo tips which may help and feel free to add any that you may come across. 
    https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/bowel-colon-rectum-cancer-forum/221768/chemo-care-top-tips--

    Hope this helps - it’s normal to worry but it may not be as bad as you think - I continued to work part-time in an office through mine as I liked the distraction and it helped keep life normal. 

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Kareno62

    Thanks 

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks is the pins and needles the peripheral neuropathy?