Hello - awaiting oncology appointment

FormerMember
FormerMember
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Hi,

I was told last Monday I have bowel cancer, liver and possibly lungs and pelvis. I’ve had a biopsy and MRI’s and have my oncologist appointment next week, feels like an eternity to wait. I’m  43 with a family of 3 teenage boys. The roller coaster of emotions is unreal, one minute I’m ok, then crying then angry and bitter. Family and friends  are all trying to help but it’s so overwhelming the constant questions,  suggestions and opinions. I’m petrified right now but also trying to stay calm and positive. I just want to run away somewhere in a land where cruelty doesn’t exist Disappointed

  • Hi  and welcome to the board. The waiting for results and meetings is very stressful but once you have spoken to the consultant and agreed a treatment plan then things will honestly feel a bit better. Yes Cancer can really mess with your head and people just want to help but you just feel like screaming ‘just leave me alone’. 
    I shall give you my usual advice which is to stay away from google - it can be out of date and downright scary in places - stay on here and ask anything you like, cry, rant, whatever - we’ve walked in your shoes and will be happy to support you through this. I designated my mum as contact point for the family so I wasn’t having to repeat myself to different people or you could set up a whats app group and post updates on that. If people don’t like it then tough! - nows the time to put yourself first and focus on getting rid of the cancer.

    I’ve attached a copy to a booklet aimed at the under 50s which may help with some of the treatment that might lie ahead?

    https://bowelcancerorguk.s3.amazonaws.com/Publications/YoungPersonsGuide_BowelCancerUK.pdf

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi , sorry to hear of your diagnosis.  I remember the feeling of wanting to run away very clearly.  This really is the worst time in the journey and as  said it will get easier when you have a treatment plan in place, I promise.  I have a spread to the liver and I started chemo pretty quickly, the nurse said to me the best thing I could do while waiting was to excercise,  even just a little walk out in the fresh air, so that's what I did along with eating well and it did help, even if it just made me feel like I was in control of something. 

    Let us know how the appointment goes if you can, we are all here to listen and are in the same storm, if not the same boat.

    You can do this.xx

  • FormerMember
    FormerMember in reply to Kareno62

    Thank you so much for your kind words, it really is reassuring to know once I have my plan these thoughts should settle. I will get reading the under 50’s booklet straight away. Thank you for taking the time to reply it really does mean a great deal. Calli xxx

  • FormerMember
    FormerMember in reply to Star74

    Thanks again for taking the time to even reply I’m so very grateful. I have my Mum making sure I’m eating well and am trying to get out for a little fresh air and a walk each day. Today I haven’t even gotten out my pjs or brushed my teeth, I suppose each day will be different. Wishing you well and thanks so much. Calli xx

  • Absolutely , there's nothing wrong with a pj day, I have had a few of those lately! Be kind to yourself.xx