Hello everyone

FormerMember
FormerMember
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Hello everyone, my father was diagnosed last year with bowl cancer he has undergone radiotherapy, chemotherapy and then surgery. He was struggling for quite a while until I eventually got him to see a doctor, he’s very low in mood at the moment as he now has an irreversible bag and he’s very conscious about it. Over summer he had a difficult time being poorly due to his stoma closing and his pipes dying leading him onto being bunged up. He was throwing up vile, hiccuping and his stoma wasn’t doing anything. We finally got this sorted two weeks ago but they had to cut his stomach open and he currently had 15 staples in as they had to connected healthier pipes. They stated they was low staffed and under resourced which is understandable however it left him in pains for three months until they finally decided he needed emergency surgery.

Does anyone know who I could get in contact with to help with talk to someone about his worries, concerns, thoughts and this huge change in his life. 

  • Hi Fletcher. 

    I so sorry that your dad has had such a terrible time. He hasn’t had a very positive start to his managing his stoma. 
    I have an ileostomy which I had during a LAR operation at the beginning of August. Originally it was going to be temporary but now there’s a question mark over that. So although we have had different cancers the stoma managing is very similar. Did he have a ileostomy or colostomy? 

    Theres another group here ileostomy,colostomy stoma support. I’ve had so much support and tips. I’m sorry I’m not an expert I just wanted to say hello and welcome. 

    I hope you dad improves soon 

    take care 

    Ann
     ‍Art

  • Hi ,

    So sorry to hear about your dad . It is so rough for him .

    https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/bupa-counselling-and-emotional-well-being-support

    This might be of some help to him. Others have found it beneficial.

    You might also want to use our helpline . They cover the emotional adjustments to cancer as well and completely confidential . 
    0808 808 0000.

    The helpline staff may also be able to give you guidance on resources local to your dads area which he may be able to link in with.

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to Artsie

    Thank you for responding! He had a colostomy, there’s so many different terminology’s aren’t they!

  • Hi Fletcher.

    There are lots of terminologies and it get very confusing at times  

    I see Courts posted. She’s absolutely amazing. Pops links and knowledge for us all.

    We are so lucky here to have so much support  

    Early days of tending to the stoma can be trying. The stoma nurses are angels and any concerns contact them. They can sort out the right products and care if there’s any problems. 


    Ann
     ‍Art

  • We are definitely a team  I know absolutely nothing about stomas , not a thing !

    But between us all we get there !

    Hope your doing well .

    Court 

    Helpline Number 0808 808 0000