Chemo

Hi JymeBob, Jenny,

I had an ileostomy while I had three months of Capox. The oncologist offered me six months of a lower dose because of the possible effect on the output but I said I would manage it, which I did with loperamide. When it got too runny I would take two tablets half an hour before each meal. I don't know how folfiri works but if it involves a pill you don't want it passing through too quickly and not being absorbed.

I would think that your oncologist should advise you on this.  All the best to your husband for his treatment.

John

Hi John, ah yes he had loperamide with his folfox so maybe he’ll have that again. He didn’t have the stoma during that chemo. We’ll find out today he’s due in 10.15 . is your ileostomy to be reversed ? How are you coping with it? Simon was hoping for the ileostomy but they had to fit the permanent stoma. He’s coping really well with it , but this is thr first chemo with it. It’s an infusion over 48 hrs every 2 weeks for 3 months. 
thsnkyou for your reply 

Jenny 

Hi Jenny, thank you for asking, my ileostomy was reversed a year ago and I am doing ok with the 'new normal'. I have an older friend of mine who has had a colostomy bag for twenty years and just treats it as normal now.  Glad to hear Simon is coping well with the bag, I hope he copes well with the Folfiri also.

All the best, John