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My brothers been admitted to hospital with bowel obstruction. He had a colonic stent put in a few weeks ago in the hope that it would avoid this. He is in a lot of pain because his abdomen is very distended. The plan is to give him enemas to try and relieve the obstruction which they believe is due to constipation rather than tumour progression. Needless to say I’m worried sick. He is in so much pain that he’s on iv morphine which is obviously not ideal as the side effects can make the obstruction worse. He has been reluctant to tell anyone that he hasn’t really been moving his bowels properly since the stent because he is so scared that he will end up with a stoma. His fears about his are understandable but I think he would have a much better quality of life with a stoma. 

its not my body though, and he’s in the hands of professionals that will decide what’s best for him. He has not had much luck so far, I just wish he could catch a break. His surgeon is away this week, so he’s waiting to see the on call surgeon later this evening. 

He drove himself to the hospital at 6 am after suffering horrendous pain all night. He didn’t tell me where he was until lunchtime. I will have to go and find his car and take him some stuff for staying in hospital. He was under the impression they would let him go home later…. WRONG mate you’re not going anywhere with an obstructed bowel.  He will be the death of me this lad.

  • Hi . You sound like you’ve got him sussed! Hopefully the enemas will clear the blockage but it sounds like you’re going to have a battle on your hands if he has to have a stoma. I’ve just been reading an article on the DJ Adele Roberts where she’s posted a selfie of herself with her stoma bag and I thought ‘Good on her’ for being so open about it.

    Please keep posting and let us know how he’s getting on?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember

    Hi Lozberry, your brother is going through a rough time at the moment, and i feel for him, but we have all been there, i had a stoma fitted last year, reasure your brother it is easy to manage, and he would get used to it, we are all here to help each other, and there is always someone around to give advice and answer questions, i have been lucky to have these lovely people to chat to, it is daunting as we dont know what to expect 1st off, but he will get there, i had my 1st cycle of a new treatment today, so just hoping it helps ,Take care, hugs sent to both of you xx

  • I could actually kill him for not telling me about this. He thought it would just pass. He looked awful when I went to see him earlier. The pain wasn’t being managed particularly well. I hope they can sort that out, he needs sleep as well. Don’t expect he will get any tonight though if they are continuing enemas. Not convinced they will work personally but we will see.

  • Thanks nan-nan, his colo rectal nurse will see him tomorrow, hopefully she can convince him that life with a stoma is not as bad as he is imagining. I personally feel that’s where things are headed because the stent hasn’t really worked well. He can feel it’s presence because it’s quite low down in his rectum and he feels like he needs to go to the toilet constantly day and night. I think his quality of life would be improved if he had to have a stoma but we will have to just wait and see.

  •  you have your work cut out for you with your lovely brother ! However your clinical judgement was spot on ! You thought something was not quite right with the stent ! 

    Also hope someone pays attention to the pain meds ! You see all these things don’t you ! It’s so hard seeing a relative in pain !

    It does sound as though he has a tough night ahead . Thinking of you both ! 
    Court 

    Helpline Number 0808 808 0000

  • I have just rang the hospital, and he has dozed on and off this afternoon which is good. His pain is now being controlled better, he had some weird 2 hourly prescription for morphine which I think they have now converted to oral morphine hourly if he needs it. He is happier now he can have a drink. He’s still not moved his bowels but I’m guessing there will be a tsunami tomorrow once the docusate, macrogol and senna all kick in. Confused

    Trying to be optimistic that this will sort him out, but I have got a feeling this may not do the trick and he will need surgery to relieve the obstruction. I hope not though.

  • Hope he had a comfortable night ! 

    Hopefully if he needs surgery they will get round to it quickly for him !

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • I have just spoken to his surgeon, the CT scan shows faecal matter rather than tumour progression they think. They are continuing conservative management for now. He had a terrible night vomiting everywhere, thanks to 10mg of morphine iv every 2 hours. He hasn’t ever had opiates before so he was out of his skull when I spoke to him first thing this morning. He had too much.They have involved the pain nurse and palliative care team and got his pain meds sorted.

    I have told the surgeon that the stent hasn’t really worked as hoped and that he is constantly feeling like he needs to move his bowels. He said they may need to re- stent him or consider a stoma. He also might want to pass a flexible sigmoidoscope to see what’s what. He can’t do that until he’s cleared out properly because he won’t be able to see anything.

    The nurse has said that he has refused his medicines today because his bowels are now moving. She did say though that she asked him to take them while his mate was visiting and she thinks he may have been embarrassed. ( No xxxx Sherlock) I have told her he will comply to the letter if someone explains the rationale for it, he won’t just do what they tell him to unless he understands. I have asked her to try again in private. They are taking good care of him and they all seem really nice.

    so we have to wait, he seems hopeful that they can get him over this, but we need  a plan to ensure this won’t keep happening.

    I have filled the surgeon in on his absolute fear of having a stoma and his reluctance to do anything that will potentially delay his chemotherapy.

    I don’t think he will be getting it as planned next week, he has got a temp and they’ve started antibiotics.

    I am most definitely having alcohol tonight, my nerves are in shreds.

  • My mum was like that on morphine! She was so sensitive to it ! Your poor brother !

    He does sound quite a character though! He also sounds as though he has staff around him who want to build good therapeutic relationships with him !

    The consultant makes a lot of sense ! I guess they want a bit more information before deciding the best approach and I guess that’s a good thing ! 
    You have been absolutely amazing throughout this and a wee drink seems on order !

    It totally drains you doesn’t it !

    Sometimes they just need to hear it from the consultant that it won’t cause too many long term implications to take the time to get it resolved now ! 

    Hope you both have an easier night !

    Court 

    Helpline Number 0808 808 0000

  • He is a pain in the neck sometimes but he is literally all I’ve got left family wise.Our other brother died age 41, then my dad died 4 weeks later. My mam died 5 years ago, so it’s just me and him. He is in much better spirits tonight now that he isn’t out of it with the morphine. He is tolerating water to drink without being sick, so he is definitely improving. He hasn’t refused any of his medications after they explained things in a bit more detail. I would have gone in and made him take them if he’d kept refusing. I’ve told him to prepare himself for being there till after the weekend. He better not start agitating to get home before he’s ready. So 24 hours on he is in a much better state.