Newly diagnosed and all over the place…

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Hi,

so I have a brand new diagnosis of colon cancer from a recent colonoscopy. I know many of you will have been there but it was a huge shock as I’m young and everyone involved in the medical process had told me my symptoms were likely to be some form of IBD. 

im very grateful my GP helped me get access to testing “just to be sure”. 

currently I am waiting for CT scans etc to find out what it is I’m facing. Still feeling numb and overwhelmed but it’s very reassuring to know that groups like this exist. I know I’ll need support. 

so far my biggest questions are:

- how do I get my mindset right?

- how do I tell people? (wife and mum know)

any advice and support very gratefully received. 

Martin 

  • firstly take a deep breath, then take a (hug). We all know where you are at. Ask any questions on here, someone will know, we all muck in to help. I liked to chill outdoors for a few minutes, sort of mindfulness I'm told. 

    Telling people, I started a thread a while back, 'to tell... Or not'   So it might help you to read through everything everyone said, save repeats. Sorry I can't give you a link! Maybe  can?

    Anyhow happy to help if I can!

  • thanks, so good to know I’m not alone in this. I’ve been for a long walk each day since I was told, even in the sideways rain this morning! Like you I’ve found it grounding and restorative. 

    I’ll try and find that tread but a link would be great. 

    m

  • Tagged you in the thread, easier!!!!

  • Found it and had just read it. Thanks. 

    Currently I’ve told a friend who has lived with lung cancer for 10yrs and that call was the best 30mins since diagnosis (he told me to come here). And I’ve also had to tell my boss. 

    I know at some point later this month I’m going to have to tell friends. How was people’s experience with this? Face to face? On the phone? An email? 

    m

  • Good you have a sort of kindred spirit to talk to. As to how to tell people I had no real choice as to distance, but I did email some initially as easier, they can then digest as then speak or return email. You can say what you want, without pregnant pauses!!!

    Local friends I told face to face, as with work. Anyone else, depending if it sort of came up. As in the thread, I didn't really hide it, just not broadcast it!

  • Hi  and a warm welcome to the board from me too. Your head will be all over the place at the minute but once you have a plan in place then things will honestly feel a little better. The waiting for scans, results,meetings etc. is very stressful but please try and be patient - stay away from google and wait for the results. Telling people can be a bit awkward. You may want to wait until you have all the facts in place if you can? After I’d seen the consultant I was able to tell people that I was being treated with a ‘view to cure’. I worked in a small office so told everyone individually but you could do a team email if you wanted or mention it at the end of a staff meeting? 

    Bowel cancer is notoriously slow growing and very treatable especially if caught early. The next year will be tough both mentally and physically but it is doable. Break it into steps and tick off each stage of treatment as you finish it. Everyone on here will be happy to support you and share experience. Keep posting and ask anything you like - there is nothing too daft or embarrassing!

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm