New to colon cancer

Hi Caz999, it sounds like you've been through a lot recently and have had a tough time. I'm not surprised you feel very angry and disappointed it wasnt picked up last year. 

How did the operation go? Are you recovering well?

Scanning you to complete the staging is standard practice and is the worst time in many ways as the uncertainty is very hard to deal with. When will the scan be? I hope and pray that it will be positive news for you and you can get back on with your life. 

Thanks. The op was ok. They removed my sigmoid colon. I was in 13 days as the join got infected. I'm ok but the pain in my belly has not reduced and it's been 8 weeks. So they are going to scan that too.

He did say that it was detected in 1 lymph node but they removed 30 and only 1 had cancer.

Today they said it will be at least 2 weeks for a scan. But I suspect I will have to chase for that too as the only reason I got the follow up call today with the results is because I contacted the patient advisory service at the hospital to complain about no follow up after 7 weeks from surgery.

Gosh it sounds like you've been through the mill. I hope the pain in your belly will get better soon. At least you've got that big op out of the way.

That's very positive only 1 lymph node out of 30 had cancer. 

That is really poor you've had to chase them up so much. Though generally after surgery they give you a good amount of time for your body to recover before moving onto further treatment (if required), so it's unlikely your treatment path would be any different at this stage. However, the sooner the scans are done and you know if/what further treatment is required, that will help a lot. The uncertainty is so much worse. 

A 2 week wait for a scan sounds about right but they often have cancellations and can get you in sooner. 

I just wanted to say hi and that my husband has pretty much the same as you, we are 4 weeks out from an emergency right hemicolectomy and colectomy of sigmoid and tumor. We thought he was constipated! He starts chemo next month as he has cancer cells in 1 lymph node, and he has a temporary stoma which is also something else to get used to. My husbands tumour was 3cm, a nurse suggested it had been growing for years, he had never had a colonoscopy to detect it. 

Big hugs. You got this. There is time for treatment. There are so many amazing stories of treatment that you have to have faith. I do understand of course that it should have been spotted as potential hereditary but here you are - let’s help you get the best treatment right now. I’m new here but already learning so much from those already on the journey, the meds they are on. You’re not alone! 

Thanks so much for replying. Gosh your husband is in a good position after 4 weeks from surgery and already scheduled for chemo. I'm 8 weeks out and they haven't even written to the oncologist yet.  I kind of felt I'm a menopausal woman and they just don't think I matter as they even forgot to follow up after the surgery.  2 months to tell me I have cancer after surgery. I left 2 messages on the consultants phone service but no response.

Thanks for your kind words.  I just feel angry that I got admitted with same problem 1 year ago and they just missed the cancer And said its just bad luck.

I just need to sleep on it I guess and get some perspective. 

Caz999

I would be pretty upset at that too ! I suspect we are starting to see the full implications of covid on the NHS now ! Not surprisingly but heartbreaking for the people affected !

Still holding out this is contained for you and only being in one lymph node after all that is pretty amazing !

Saying that I think it’s pretty rotten not to get your results either !

I wish I could help lessen all this for you but we can support you going forward and hopefully see you through this till this is all firmly in your rear view mirror !

Take care ,

Court 

Thanks so much x