My first post hello

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Hi 

I wish I had come here sooner. I was diagnosed with bowel cancer in June. No symptoms, such a complete shock when I was told on the phone.

I had a right hemi colectomy on the 17th August which was successful in removing the cancer and my lymph nodes are clear. Great news, I know, but I am really struggling with recovery, both mentally at physically. 

Since the operation I have had bowel incontinence. I didn't know this would be a thing. I feel quite alone and housebound. Currently take loperimide and codine for this. Is anyone else going through the same? I would love to hear from you and any advice 

So exhausted x 

  • Hi  and a warm welcome to the board from me. Great news about the op being a success and no lymph nodes but you shouldn’t have to be struggling like this. I’ve attached a link to a booklet about regaining bowel control and page 4 talks about bile acid malabsorption which affects up to 80% of people who have a right hemi colectomy. It causes chronic diarrhoea that does not respond to the usual medication. Your doctor can test you for this then prescribe a specific medication to treat it. This sounds very like what you have!

    https://bowelcancerorguk.s3.amazonaws.com/Publications/RegainingBowelControl_BowelCancerUK.pdf

    If it’s not this then there are lots of other tips in the booklet and please ring your Colorectal Support Nurse for help.

    Going forward I’ve attached (another!) link to a paper about how people feel after cancer treatment which has helped a lot of others - you can have a read now or just keep it under your hat for later

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    Sorry about all the reading but I’m glad you’ve found us here and we’ll help and advise you if we can

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thank you so much for this information. I will contact my doctor. I'm already on loperimide and codine. 

    Thanks again. This had actually made my day x 

  • You’re welcome  I actually felt quite excited for you when I came across it! I really hope this is what’s causing the problem and it can be easily remedied Fingers crossed tone1 x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Karen, 

    Thank you for posting the link above about what people feel after cancer treatment. I have just read it and it completely sums me up. The operation I had was approx 3yrs ago and I am still coming to terms with everything. The part about losing confidence was particularly an area that I experienced and have struggled to come to terms with but accepted it with adapting to doing things differently etc.  I have gone through all the stages the paper mentions.The paper has helped me so much in understanding I am actually not going mad and that small steps is the way forward in dealing with the emotional aftermath that cancer brings. Thank again

  • You’re very welcome  and lovely to hear from you again. So glad the paper helped - I still refer back to it myself sometimes. I pinched it from Mike the Highlander on the Life after Cancer board - he has some brilliant advice and well worth a post/read

    https://community.macmillan.org.uk/cancer_experiences/life-after-cancer-forum

    Good to hear that you’re still clear but please don’t struggle along in silence. Are there any Maggies support centres near you or Macmillan Support Centres? The support team on here are available every day from 8-8 on 0808 808 00 00 if you ever need to chat and there’s always us of course!

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thanks Karen. No Maggies near me but I am ok. It was just lovely to read that the emotions I feel are normal. Sorry I haven't posted for ages but in a way I wanted to run away from cancer and forget even that it ever happened. Reading the paper made me realise the different stages of recovery that I have just come through without really realising it and it made me feel so blessed. I feel so much better after reading it. Thanks you for posting it