Hi all, I created an account a few weeks back but have just been reading others situations and experiences.
I went into A&E in June with abdomen pain and vomiting, had an X-ray, CT scan and straight into surgery - all happened so fast I’m still processing it now. I had left my 5 month old at home (I was still breastfeeding) and my 12 year old with my partner.
The day after surgery was told a 50mm tumour had been obstructing my bowel and they removed that/ my appendix and 21 lymph nodes… and it was highly likely cancerous!
I then had a months wait whilst healing from surgery to be told it was a stage 3 bowel cancer they had become aggressive likely through feeding off my good pregnancy hormones and grew itself whilst I grew a baby - I feel lucky in one respect that I had a totally uncomplicated pregnancy and a healthy little girl!
So tumour out and clear margins, but it had got into 7 out of 21 lymph nodes. But a clear liver on the MRI.
I had a colonoscopy two weeks ago where they removed 9 more polyps and I have a feeling some of them had turned too but waiting on that result.
I was due to start chemo treatment on the 10th August but low and behold our household was hit with Covid - so now waiting to be 28days clear.
it’s been a rollercoaster and still feels surreal as I’ve healed well from the surgery. Hopefully should start treatment in the next few weeks - very anxious about how that will affect me and managing an 8 month old. My 12 year old knows all the facts and is handling it well but is a natural worrier and it’s heightened her fears of catching anything that could harm me :( she shouldn’t have those worries…plus she has a genuine fear of sickness.
Macmillan rang right away and they are due to meet us all in a few weeks as a family, I have a 12 year old step son also who’s with us fortnightly. Then my daughter will hopefully get weekly meetings whilst at school to keep her worries at bay.
taking each day as it comes, still feels like it’s not happening to me some days and I struggle to get my head around it. I’m 41 years old and was fit and healthy xxx
any tips on dealing with it all much appreciated. Xxx
Hi and welcome to the board. Good to hear that you’re through surgery and there’s no spread. It’s a shock isn’t it - it feels surreal to feel to well and then have treatment that makes you feel worse than you did before!
Chemo can be tough but it is doable. It’s worth keeping a diary to remind you to discuss any side effects with the nurses but also to see if a bit of a routine develops so you can plan around how you’re feeling - you might find that you’re very tired on days 1 and 2 so need extra help but feel good on your week off so can plan some nice treats. Your immune system will take a bit of a battering so discourage anyone with a cold from visiting.
We’ve recently started a top tips post for people going through chemo so hope some of that helps and feel free to add any of your own
Has your daughter been weaned now? Sorry for such a personal question but I don’t think it will be allowed during chemo
Lastly there’s a really good booklet below about talking to children - it’s nice and colourful and easy to read and I’m sure the Macmillan nurses will have plenty of advice too
https://www.bupa.co.uk/health/health-insurance/bupa-cancer-promise/i-know-someone-with-cancer
Sorry about all the links but I always liked to know as much as possible before going into meetings etc. and with chemo it’s always reassuring to know that something is normal
Glad you’ve found us here and the posts have been helping
Take care
Karen x
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