Colon cancer

FormerMember over 3 years ago

2 replies
179 subscribers
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Hi i was diagnosed with colon cancer at beginning of march 2021, had operation to have 12 inches colon removed but did not need a stoma bag at end of march. Im now on 6 months chemo treatment as a precaution incase anything moved elsewhere. I also have dpd deficiency which effects how you respond to treatment and they start you on lower dose and gradually up the dose. Ive just had my 3rd cycle 3weeks ago and they up the dose to75%. I dont know if thats the reason ive been feeling terrible or whether everything has just hit me all at once ( diagnosis, operation, chemo). I can deal with a lot of side effects but what im struggling with is anxiety, not sleeping great and feeling quite low and just crying for no apparent reason. Ive got a good support with family and friends but sometimes feel very alone.i was supposed to have 4th cycle on friday 6th august but they put it back a week with me feeling so poorly to give me more time to recover.could anybody advise or relate to my story. Thanks Alison ( age 54)

Kareno62 over 3 years ago

Hi . I think we sometimes underestimate the emotional side of cancer and it can sneak up on you almost like ptsd. Things are quite frantic to begin with with all the scans and meetings and then surgery. You start to feel a bit better - the cancer is gone and the chemo is the belt and braces - and then the reality hits you and what you’ve been through. Friends and family are a great support but sometimes you need to talk to someone who’s been in the same boat to really understand. Have you spoken to your doctor about the sleep and feeling low? Or may be considered some form of counselling?
Ive attached a link below to a paper which talks about moving on after Cancer. Some parts may be relevant now and some later so you can just dip in and out of it.

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

The nurses on here are available every day from 8am-8pm too and have lots of advice and suggestions. The number is 0808 808 00 00

Hope they are able to find an acceptable dosage of the chemo and you start to feel a little better

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

Nelly1955 over 3 years ago

Hi Nana 2020; I really understand your anxiety, I have felt anxious for a while with cancer diagnosis. I spoke to the nurses on the Macmillan line a lot, so kind and helpful. I agree with what Karen 62 has put about the underestimation of the emotional side. I would advise taking to your doctor if you haven’t already. I also understand that although you have support you fee alone. I try to explain to my husband but if I don’t understand why I feel this way how can II explain it. I have had my treatment but I think things take a while. Sending you hugs and best. Wishes xx