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FormerMember
FormerMember
  • 7 replies
  • 176 subscribers
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Hello 

don’t know what to expect from this bit out of my comfort zone.

still in shock ! 
Starting Chemo next week - just wanted to wish all here the best possible recovery, where ever you are on your individual journeys.  

felt needed to be able to communicate outside Friends and Family.

cheers 

  • Hi  and a warm welcome to the board from me. Yes it’s a hell of a shock but, hopefully now you have a treatment plan in place, then you feel a bit better? 
    Friends and family are very supportive but sometimes you need to talk to someone in the cancer ‘gang’ who totally gets where you’re coming from. I also found that you put on a front so as not to worry people and they put on a front so as not to let you know how worried they are - it can really mess with your head!

    Anyway, are you able to give us a bit of background? Whereabouts is the cancer and what treatment are you having? 
    Everyone on the board is at various stages of treatment or recovery and we’ll be happy to support you through this. If you click on people’s names then their profile page may show their treatment so far and if you want to ask or reply to a specific person then just type @ and then their name (no space) and it will alert them eg. 
    If you want to save the board as an app then click on the little box with the pointy uppy arrow at the top right and a box will pop up and you should be able to scroll down and click Add to Home Screen.

    Please keep posting and let us know how you’re doing

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Me too I have never even had a Facebook page ! However watch out as you can find yourself here for a while ! Ha !

    I found it a safe place to get information but also to see how other families handled this .

    Hope to see you posting some more !

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Thanks Court - very much appreciated 

  • Hi, , all the best for your chemo. What ones are you having? Someone will invariably have had the same if you've got any questions. 

  • FormerMember
    FormerMember in reply to Gemmary

    Hi Gemmary 

    this sounds terrible but I only got the information today via VC so info coming via post  however I know it’s intravenous half day and oral for the rest - 12 weeks. 
    4 course   Will post once I have official names   

    thanks for email much appreciated, still trying to get use to this site 

    hope you are doing well 

  • FormerMember
    FormerMember

    Hello JTe

    All the best for your chemo. I started oral chemo (capecitebane) March 2021, until Sept and so far, so good. Sore tingly hands and feet but that has honestly been it, so I am not complaining at all! The meds are my friends, so I tell myself each day ! The list of side effects are indeed very long, but try not to overthink it all, it may not be bad at all. Everyone is indeed different, but I found walking every day really does help me feel better and I think it may be helping keep negative side effects at bay. 

    All the best, take care and keep us poste on your progress.

    Best Wishes 

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Rose 

    Thank you for your message much appreciated and I will definitely try to stay positive and walk everyday.

    Hope you are recovering well. 

    best wishes