My husband was diagnosed with inoperable bowel cancer last year and developed dementia which now makes it impossible to discuss anything with him.
We both came to terms with the diagnoses and made plans to make memories rather than keep looking back dementia has taken this away
We still have a loving relationship but he has no idea about his cancer now.
I have tried to talk to friends about how this feels, but it is hard for them to understand.
I am a very positive person and he is my soul mate.
Hi and welcome to the board but I’m so sorry to read about your husbands diagnosis and how much harder this must be with his dementia. I’m sure courtwill be along shortly with her wise words of advice. Have you thought about posting in the Carers page?
https://community.macmillan.org.uk/cancer_experiences/carers-only-forum/
The nurses on here will always be happy to talk and listen too. They are available 7 days a week from 8-8 on 0808 808 00 00
Sorry I’ve not been much help but we’re always here if you want to post or join in the monthly chat or just want a virtual hug
Take care
Karen x
https://www.macmillan.org.uk/cancer-information-and-support/supporting-someone/cancer-and-dementia
Hi
Welcome to the forum ! I am so sorry your husband is contending with two diagnosis at the moment but can I just say you post is most touching and your devotion heartfelt .
I have included a link to a leaflet specifically on managing cancer when someone has dementia just from some of the practical aspects but I do suspect you have most covered .
I can see how difficult it must be to have to try and navigate his symptoms when he has not retained the reason for them . It must be very difficult for you to find ways to approach this without him having insight ! Is he currently having any input from oncology ?
How are you finding getting support if he has side effects ?
It does come up here a lot and in my previous occupation I was a community occupational therapist so have a little insight into the type of situation you find yourself in . More than happy to listen at any time if it is of help to you .
I am also so sorry that you did not get the opportunity to make more memories.
take special care ,
Court
Helpline Number 0808 808 0000
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