I'm at that limbo stage, where I've been diagnosed with colon cancer but not on a treatment path yet. Had a scan today to check whether the cancer has spread and it's now a waiting game before I find out exactly what's going on and what my treatment path is. How do you deal with the awful wait? One minute I'm confident it's been caught Earl and the next I'm convinced I'm riddled!!
Hi there, Open Road.
Are you symptomatic or was it a routine screening that caught it?
I sympathise. I was diagnosed 12 days ago with a tumour close to my appendix. CT scan was given there and then. Luckily for me, I got a call next day with the results, which were that other organs are clear.
Met surgeon yesterday, and was told CT scan actually has some swollen lymph nodes - so now I’m more worried!
That said, I agree with the old adage, “don’t worry about things you can’t control“. I have surgery slated for 15th July so I am planning to (1) self isolate, within reason (2) eat sensibly (3) get fit.
The big one is “self isolate”. To do that I need to contact work and request time off, not to mention all the other logistics.
Anyway, the aim is to keep busy and active and not dwell on the subject. But here I am reading and writing about cancer at 1:10 am! So I’m off to bed to follow my own advice.
Hiya
i was caught by screening... one of my 60th birthday presents, but what a great present! The colonoscopy confirmed a pretty large tumour and they took out around 8 polyps. Ive been lucky too that all my appointments and tests have been within a week or thereabouts, only another week to find out but I think it's the frustration of not knowing what the fight is going to be. Hopefully they've caught it early enough that it will be relatively easy to deal with.
I'll be thinking of you on the 15th and sending you healing thoughts and prayers
j
Well, the comforting thing for both of us is that bowel cancer is usually quite slow growing, or so I'm led to understand.
I am not much of a social media person so writing stuff on this Macmillan forum is a novelty for me. We are at about the same stage (and age! I'm 56) so I'll keep an eye on this thread. Good luck next week with your results, please update me with your news.
Where are you based? I'm East Midlands - treatment for me is at Kettering General.
All the best,
B
That's exactly what I was told too, so that's reassured me. Lost 2 of my brothers before they were 60 with small cell lung cancer so it was almost a relief to be told it was colon cancer.
I'm in the garden or England, Kent. My daughter lives in the midlands (Nottingham) and she wants me to have my treatment there but there's nothing like being at home, plus I've got 2 other daughters down south and friends so I'm blessed to have a big army fighting with me. I hope you've got someone in your corner too.
I'll definitely let you know the outcome and of all my tests. Here's to kicking cancer into touch!!
Snap! It's a tricky place to be. Not sure how to cope with it other than try and keep busy and stay in the moment. I had colonoscopy after FIT test came back positive. Consultant told me at the time it was a malignant tumour (I could see it on the screen so he had to really). That was 1st June, had CT scan on 20th and had consultant appointment to discuss results on 25th. Had yo rearrange as that was my son's wedding day. Now waiting until Thursday. Like you I go between 'it will be fine, just needs to be cut out' to 'I'm riddled' too. I am trying to keep to my usual routine of running and walking and eating well. Fingers crossed for you and I'll check back to see how you're doing. You too bikesandbees.
I hope you thoroughly enjoyed your sons wedding! I sometimes think worse than knowing you have cancer is to tell the people you love. I've got 3 girls, the youngest just went to pieces but she's finnow, well as fine as you can be when you're scared you'll lose your mum! I'd rather have this than any other cancer, thinking of asking the surgeon if there's any chance of a bit of liposuction whi
he's at it.
I'll be praying it's good news for you on Thursday. Do please let us know how you get on. Sending healing thoughts c
The wedding was tiny but lovely. Yes, its horrible telling them. My daughter lives in USA and it’s tough for her. Not seen her for 18 months which doesn’t help. Let’s hope it’s good straightforward news for all of us
Hi Lizzie I was thinking of you Thursday and said a little prayer hoping that your meeting went well. I'm hoping for the same meeting next week. All psyched up to fight but don't yet know what I'm fighting! Stay strong! X
Thanks so much for thinking of me.
The meeting went well and the outcome was as good as it could be. So no spread to other organs and a right hemi-colectomy scheduled for first thing on 14th July. He'll remove about 1/3rd of my bowel. Can't say yet if nodes are affected but 2 nearest the bowel look swollen. Said that could be a sign the cancer has spread but could also be the nodes are inflamed and swollen because of the tumour being there. So will have to wait until they are biopsied before I know whether chemo is required.
We was so relieved it hadn't spread to any other organs I actually celebrated last night with my hubby, and son and family - had a takeaway and 4 glasses of fizz in their garden!!! That may sound weird to celebrate - but then again maybe not. It was an absolutely beautiful day here in Edinburgh. Self isolating from now on, but can go for a walk etc just stay away from people.
Both surgeon and nurse said because I'm young (63) and fit that should help with my recovery. I'm sure I'll get a bit nervous nearer the time but feeling good in the meantime.
How are you holding up? Have you got any dates yet?
Yay! So glad you celebrated. I think every small positive should be celebrated BIG!! And I'm so pleased for you that it looks contained I'll be saying a little prayer for your surgery... the good thing is you get knocked out and, i just love a general anaesthetic, I know most people hate it but I love that feeling as you go under. Probably sounds a little weird! Lol. As for me, had the scan, my MDT meeting is Tuesday so I'm hoping I'll know what's what by the end of next week I'm not stressing because the nurses have reassured me that our type of cancer is slow growing, but it's still human nature to be impatient in these circumstances I'm in Kent and have to say they've been brilliant so far and, like it seems with you, I'm blessed to have so many people behind me... onwards and upwards!!! X
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