Hello everyone. I've just joined your group

FormerMember
FormerMember
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I was diagnosed with bowel cancer in October 2020. Just had my 11th session of chemotherapy and due another scan in July. It's a really scary time for me as the cancer was in 19 out of 29 lymph nodes and spread to my liver and lung. The last scan did show a shrinkage in the tumours so fingers crossed that it's still working. I struggle with tiredness especially when the steroids stop 3 days after the chemotherapy.  I'm discharged with a bottle of therapy which infuses the drug over a period of 46 hours. Does anyonehave any tips to help me overcome the tiredness and wobbly legs below my knees. Thanks

  • Hi 

    Big welcome to the forum . I am glad you joined in the discussion!

    11 sessions of chemo is a lot so very well done and for gaining shrinkage ! You are clearly made of strong stuff . My mum could only ever do 6 at one time ! 

    If you click on my user name you can read my mum’s story over the years with managing a stage four diagnosis. I think the first year her mind focused more on gaining maximum shrinkage and too frightened to think about finding a better balance . After chemo her legs were like jelly and she found it hard to stand . They required to reduce Oxaliplatin by just ten percent the second year she had treatment and the slight change of dose removed a significant amount of side effects and always a very individual thing but she still had shrinkage . It took time for her to be able to have a conversation with her oncologist about finding a bit more balance . She did have six months without chemo in between and after only a few weeks her energy did come back up ! How do you find fluid intake. This was a big issue for my mum as she frequently dehydrated and it really impacted her !

    Hope your scan goes well and I also hope you get a chance to talk to your team about some of the side effects to see if there is anything they can do to help you .

    Treating cancer like a chronic condition took time to get on board with but my mum did gain some confidence when shrinkage occurred.

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Thank you for your reply.  I shall read your mum's story and I find it useful to talk with fellow sufferers.  The diagnosis came as quite a shock to me and I'm still trying to come to terms with it all. At one point I was told that the treatment was palliative so my husband and I were devastated. However my oncologist told me that she was optimistic that the treatment was going to work. I know after my next scan I will either remain on the same regime or, if it hasn't been successful,  they will start me on a different one. Either way it means more chemotherapy.  I go every 2 weeks at the moment and it takes me about 8 days to recover now. I'm not sure how I will cope but I have a strong will and am optimistic that I can just plod on

    Thanks to everyone for  the chance to share my story and talk to you all

  • Hi 

    Its such a shock ! My mum had only completed a bowel screen and we thought nothing of it . Then was told it had spread ! She had no symptoms. However they took great care of her and she had two years on and off treatments till they were able to go a bit further and that meant she had a few years off treatment ! Bit of a long and winding road but she kept going forward.

    Hope your scan goes well and your oncologist sounds very proactive! 
    Keep posting when you feel like it . It can help to see how others continue living a good life despite a difficult diagnosis. 
    take special care ,

    Court 

    Helpline Number 0808 808 0000