Hey friends

FormerMember over 4 years ago

2 replies
173 subscribers
593 views

Hiya, I’ve been lurking around here for a while and have been reading everyone’s stories and have been so inspired and hopeful by what I have read. I am 40, was diagnosed at 39 with stage 3, spread to a couple of lymph nodes, finished 6 months of chemo a month ago. Got fobbed off by the doctors since March 2020, and then ended up with emergency surgery (sub total colectomy) in September 2020 because my bowel was blocked... it took a while to get there but the NHS were amazing in the end! I’m scared about what the future holds, but you can only try and be positive, waiting on the results of my CT scan which was around 2 weeks ago... onwards and upwards!!

Kareno62 over 4 years ago

Hi Glad to hear that the board has helped and that you sound to be doing well after treatment. It’s a bit of a strange time finishing treatment - I thought I’d feel elated but I felt a bit down really. Think it was the thought of being thrown back into normal life with only blood tests and scans to reassure me but time is a great healer as they say.

Apologies if you’ve already seen this paper but a lot of people have found it helpful.

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

Hope the scan results are good

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

rosiegirl over 4 years ago

Hi Dougie13,

Your situation is remarkably similar to mine, I'm almost finished 6 months of chemo. Last oxaliplatin stopped due to increasing Neuropathy; I have 25 Capcetabine tabs left them I'm done. I was a stage 3 with a few nearby nodes affected. I can totally identify with how your feeling, I expected to feel on top of the world after finishing what has been a gruelling 6 months. But the reality is I have quite a lot of side effects, neuropathy, fatigue, weakness in joints & yes living with the uncertainty that it may come back or still be there is a whole other ball game! I do hope you have good news from your scan, fingers crossed. You have done amazing to get through 6 months too! I wouldn't wish this on anyone it has been so hard

Sending positive vibes!!