Recently been diagnosed with Bowel Cancer, had surgery now awaiting Oncologist appointment

FormerMember
FormerMember
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I was diagnosed end of feb 2021. My bloods had been low in iron and was sent for tests. At the colonoscopy they discovered a tumour (which ended up being the more aggressive Signet Ring type i.e. 1% chance of having. I had my total large bowel removed in mid April 2021 and have a permanent ileostomy. I am recovering from the surgery.

Meeting oncologist on Wednesday (2/6/21) to discuss next steps likely to be Chemo and then Radiation. Not sure what that all entails.

It’s been a whirlwind But I'm not sure if I've taken it in yet that I have/had cancer. I feel as if I'm being too calm and practical? Is this normal? I'm self employed and have reduced my work but it has kept my mind off things?

  • Hi . I’ve just replied to Glitterballs post and had to check it wasn’t the same one! I don’t think there is a ‘normal’ for dealing with cancer. I sat on the patio with a glass of wine while my husband rang his family with the news - I felt a bit bad when they were all asking how I was and he had to say I was sat there with a drink! There will be up and down days but to be honest I decided that I couldn’t change things so I might as well just get on with it. 
    I worked part-time in an office and carried on during my chemiradiogherapy by havung early morning appointments then going in to work - I was a distraction and made my life feel normal. Was I in denial? Maybe a bit but it got me through my treatment so whatever works for you?

    Hope you’re coping with the Ileostomy ok and please let us know how your appointment goes on Wednesday?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi 

    Big welcome from me too! My mum was like that too! I kept waiting on her to crash ! Despite some difficult days she was always looking forward. I think her oncologist thought she was in total denial and kept giving her some strong reality checks ! She was not pleased about that part !! Ha .

    Great you are still working and can adjust that to suit ! 
    Hope your appointment goes well . My mum came round to her oncologist and then had another super one for the last ten years . 
    Take care ,

    Court

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to Kareno62

    Thanks Karan. It’s reassuring seeing others having been through the journey and the guidance is amazing. I’m not sure what to expect re the Chemo and then the Radio re side effects, length and wider impact? 

    Perhaps I just wait for Wednesday?

    Also as I’m self employed I’m not sure if I tell clients and intermediaries as all I said is I was having a “procedure” I’ve managed the client side thus far as zoom and phone calls are normal practice since March 2020 re lockdown 

    kind regards 
    Kenny

  • FormerMember
    FormerMember in reply to court

    Thanks Court

    So your mum had 2 oncologist? Not sure what you mean by “my mum came around to her oncologist”

  • He was very blunt to begin with but turned out to be a good oncologist which she could see despite his manner ! She was shocked initially at how blunt  he was .He then moved away to a pharmaceutical company to do research . 

    Her cancer had spread so she was under the care of an oncologist for twelve years . Her most recent one was training when she was first diagnosed back in 2009 and went onto become her consultant . She was absolutely wonderful and she finally got discharged last month . She no longer requires any oncologist! She remained positive throughout the twelve years .

    Take care ,

    Court 

    Helpline Number 0808 808 0000