I am 27 years old with stage 4 colon cancer

Hi,

As others have said, you will get lots of support here. So sorry your GP let you down big time, my experience was similar and it made me very angry at times.

Though you've been told you are inoperable try and be hopeful, we all need hope. I was stage 4 and inoperable at the start, chemo did the job and within 6 months I was in surgery for both bowel and liver. There have been bumps along the road and am currently in chemo again 2 and a half years later, but I remain positive and walk at least 3 miles every day. Nothing is ever certain but do all you can to take care of yourself, physically and mentally.

Best wishes

Martin

Hello Pure4642,

I am sorry about your diagnosis. But I wanted to share with you a message of hope!  My husband was diagnosed 3 years ago; although his primary tumor was never found, he was diagnosed as stage 4 CRC from metastasis biopsy (in his 4th lumbar vertebrae).  After radiation and Xelox for this tumor, we found out that cancer had spread to his adrenal gland and that he had "a multitude" of small lung nodules, in both longs; too many to make them operable. Because Xelox had failed in controlling cancer, he was put on Folfiri + Avastin, and it only took a few cycles to completely control his lung mets and shrink his adrenal met (for which he had surgery in February 2020).  As for the lung mets, his latest scan (late March) shows a few small nodules, but they've remained stable in location in size and numbers for about 2 years now so they're considered calcified (although they're still being watched carefully, of course).  All this to say - even if lung mets are too numerous to be operable, chemo CAN destroy them!  Knowing this may help you deal with the stress and side effects of treatment.  I wish you the best of luck XXXXX

Montana Girl

Hi
Thanks everyone for your reply. I will reply to all of them during the weekend. Had my picc line fitted in and pre assessment yesterday. So much information added to my anxiety and now I have a banging headache lol. Start treatment tomorrow very anxious. Worst part I can’t bring anyone with me because of COVID.

I promise I will get back to everyone right now my mental health is not so great

It’s information overload for sure !

Hope you are safely home now recovering . You just do what you can at the moment. No pressure ! 
Court 

Hi Martin 

sorry for the late reply been very emotional but I am much better now. Thank you so much you have restored hope in me. 

I am sorry you had the experience. How did you manage your anger? 

I hope you are doing well x

Thank you so much Montana Girl it feels like you are right here with me giving me strength and hope. I am grateful you replied! So far the side effects are manageable. 
xx

Hi Court 

you have been such great help. Words can’t explain how much you have helped me during this time. 
xxx

Hi there,

With the anger it was a case of acknowledging it when it came up, I still have the odd moment. I also used the Macmillan counselling service which was massively helpful. It's a very emotional journey with bumps and challenges along the way. Make the most of positive experiences and good times. I found it really important to not let cancer define me, we are many things and not just someone with a life threatening illness.

Best wishes

Martin

Hi Martin 

I need to learn to acknowledge my emotions better. I have counselling session next week. This week got cancelled because of bank holiday lol. 

I learning about myself again. All my goals and plans I wanted to do has been put on hold. I am trying workout what I would like to do. Sometimes waking up doesn’t feel real. 

xx

You are most welcome Pure4642 . I hope the first round of chemo has not been too rough !

Court