Hi
I had a colonoscopy on Friday and found it so painful. They asked if I wanted them to stop! I continued with gas and air and felt like I was a being a big baby but got finished. They took 9 biopsies and put in 2 tattoo ink markers. She then finished and while I was still laid on the table came to the front and took my hand and said she was sorry but it was very bad news and that I had a very large tumour. I'm 58 and feel my time is up. I'm so hoping they can do something but I know I've had this for years because the pain in my side started about 9 years ago and after a hysterectomy I had an umbilical hernia and put it down to that. I even had an ultrasound which obviously just showed the hernia. I've never had my full bloods taken and get a yearly blood test for my thyroid but I was going to start some new medication and had bloods taken which showed iron deficiency anemia and that was what sent me for a gastrocopy and colonoscopy. At 4am this morning I had a panic attack and started crying. My husband made a cup of tea and then after some crying from both of us I'm talking like its all over and about him carrying on without me and living his life. I feel so bad and can't shake the gut feeling I'm screwed. Is this a normal reaction to being told this news. I wish they had waited and told me with my husband but just they just wheeled me back to the ward sobbing. Does thinking positive come after the shock or does the feeling of it being too late stay with you. I've had a cough for years and now thinking its in my lungs. I have to wait for a CT scan and have more bloods taken. I'm rambling sorry just feel so scared.
You too. What are you having done do you know yet?
That's really great news. Good luck with your RHC, it's not so bad and heals quickly xx
Thank you, won't know if it's in lymph nodes until removed but fingers crossed.
It's now Sunday - I was released yesterday Saturday. I had signed doc confirming that I knew the options for the op were the left or the slightly larger extended right and woke to see that I had the left hemicolectomy keyhole so have a quite tender larger scar in the centre navel entry area, 2 smaller ones 1 towards the left & 1 towards the right and 1 which may be a drainage hole slightly further down on the right. The most tender today is still the centre 'navel' scar, 2nd most tender is the left scar - which is - no - I mean was(!) the tumour site. I have also noticed today a blue indelible type dot at the top of my left thigh (tumour on left side) and 2 smaller dots at the top of my right thigh.
I was offered painkillers and nausea control initially but by Friday I was on just paracetamol tablets which to me was amazing. I'm obviously not saying that I am totally pain free, this morning for example, the first night in my own bed I did wake up & take a 500g paracetamol at abt 0400.
I'm expecting a check up appt in14 days (where I hope to be given the biopsy result),
I left hospital on the15th with details of my op, a discharge summary confirming that I had had a laparoscopic left hemicolectomy on the 10th May, arrived home to a q're on the screening colonoscopy which seems an eternity ago & have been told to take life easy for a bit.
For me, of course, it was a life changing event, for the nursing staff in this cancer ward they knew exactly when to let me cat nap, when to make sure I ate, took the meds etc
I've lost 30cm of colon, plus tumour etc.....and at the moment I'm simply overwhelmed with what modern medicine can offer.
Hi Quilter
I had a perforated bowel March 2020, emergency op, found cancer in bowel and lymph nodes, hospital for three weeks, curing infection from perforated bowel, then home.
Chemo started 4 weeks later, Folfiri with Cetuximab, CT scan mid treatment showed working, final CT scan things so small could not see anything, November 2020.
6 months off, fresh CT scan showed growing again, so new chemo starts 24 March
First treatment no serious reaction, just rash on back and chest.
Second treatment yet to start, feeling positive and just going for it.
Like you my first reaction was sort out finances, the end is nigh, however once treatment started, and scans showed positive results, and the care and support from all on the Oncology team just boosted me along
Just be positive, talk to the oncology team, Macmillan, any local support (we have St Giles here) attendance and carer's allowance, etc.
This is a brilliant support group and there are Facebook groups, Bowel Cancer Support, Living wit Bowel Cancer.
Google can be dangerously misleading!
Take great care of yourself and give family hugs!
xx
What a relief for you that your surgery is over. I'm glad all went well. I wish you a continued good recovery x and good look with those results x
Google and you tube very scary you're right, I'm trying not to do it anymore.
Good luck with your on going treatment x
Just need to get the results of the biopsy...then I can breathe for a moment. A
Huge hugs to all the NHS teams involved in all our care.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007