Recently diagnosed

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Hi there

I'm 63 and had surgery, three weeks ago, to remove a tumour from the upper part of the rectum, near the sigmoid colon. Cancer was between stage two and three and had spread to the lymph nodes so advised to have Chemo.

I was really impressed with the total dedication and care given in my local hospital, prior to and after surgery. 

Not sure which type of Chemo yet. I've heard some types cause less hair loss than others. Hoping overall effects won't be too bad.

Despite the recent surgery, I feel quite strong and positive overall, but always good to hear from others on the same journey towards good health.

  • Well one 

    Welcome to the forum . Glad you are safely through surgery .

    There are lots of people currently on chemo so will be able to assist and reassure you and always much better to come from someone with experience. I am a carer so a different perspective. They will pop on soon . 
    However although my mum has some thinning of her hair no one would have noticed and did not need covered up . Most first line treatments for bowel cancer are the same so that aspect is good . Did notice at the time my mum grew very big eyelashes !

    Just wanted to welcome you to the forum .

    take care ,

    Court 

    Helpline Number 0808 808 0000

  • Court, thank you for your swift response. I like the idea of big eye lashes!

    Best wishes,

    Nettie

  • Hi 

    im 4 weeks post my higher anterior resection to remove some of my sigmoid and bit of rectum . I had 1 lymph node positive and met the oncologist yesterday . I do have an underlying health issue that means I can’t go for the standard CAPOX treatment which is tablets and infusion . Instead I’ll be have Cape tablets only . It’s for 6 months . My head is also in a very good place - good luck with your treatment going forward 

  • I'm having a anterior resection in less than 2 weeks. I'm quite worried about it particularly the stoma and supplies. Will I run out of bags and what can I eat ? 

  • Hi I didn’t need a stoma in the end . My surgery was keyhole and all went to plan . The first 3 days I would say you do feel wiped out and not with it particularly but that’s more to do with the anaesthetic I think . I’d liken the pain to only being like you’ve done sit ups and I only felt that when I moved  though I took all pain killers when offered . It took a week for my bowels to open and I was surprised to find I’ve been constipated ( as I was before ) 

    I would say so far I’ve had a positive experience , I hope you do too 

  • Hi Takayasu,

    Thank you for your reply. I'm not sure how many of my lymph modes were positive. I must ask when I speak with the Oncologist on Wednsday next week. 

    Good luck and very best wishes with your forthcoming treatment.

  • Good to hear but my surgeon says defo a stoma and maybe permanent so lots to get my head round x

  • Hi Carog

    I didn't need a stoma, but I think many/most hospitals have a stoma nurse who advises and ensures evefything is ok and that you have no worries etc.

    Best wishes and good luck.

  • I know there is a great support but to be fair they haven't been through it. Would love to speak to someone who is new to stomas

  • Hi 

    I will link in  to share with you . I am sure she had a temporary stoma but it’s the same deal . There is also a forum specifically on the site I will link in for you but one way or another we will find you someone .

    https://community.macmillan.org.uk/cancer_experiences/ileostomy-and-colostomy-discussions-forum
    You might find the search facility in the ileostomy and colostomy group quite useful just now as there is a lot of information there in previous threads .

    Take care ,

    Court 

    Helpline Number 0808 808 0000