Hi all ....so yesterday I walked into a hospital appointment and in the room was a doctor and 2 nurses. I just knew it was bad news. So my history is minor bleeding from back passage started in October 20 and I contacted my gp who said it's piles and prescribed cream and suppositories. It was bleeding on and off and I again contacted gp and was given more pile treatment. At this point I was also going to the loo a bit more than usual but nothing too excessive.This was dealt with all over the phone due to covid.
In January a close friend died of covid up in Leicester and we were asked to go to the funeral. Given that I was a bit worried about the long drive there and back and I had a bit of diarrhoea I took at diacalm tablet just in case. The day went well and no issues.
The next morning the tablet started wearing off and there was diarrhoea and blood mixed in. It came in waves and then stopped so I just put it down to the amount of waste due to the tablet stopping things. A couple of days later on the Tuesday I was ok all day and then in the evening I had a terrible experience. I went to the loo and the blood and diarrhoea was unbelievable and I had to steady myself on the sink as I nearly passed out. I told my husband that I needed to go to the hospital and after calling 111 we went.
Hours in A and E and I ended up being kept in for observation and tests ending in a sigmoidoscopy that showed 2 polyps ..one 1.5 cm and another 4 cm. A further colonoscopy was planned and they removed the smaller one that had no signs of cancer. They said the larger one needs to be removed by a specialist and the meeting yesterday confirmed it was cancerous. My scans showed it has not spread as my organs are all clear.
Doctor said they will do a PET scan as there are a couple of glands either side which are slightly enlarged so they want to see if they are naturally like that or if it is to do with the polyp/tumour.
If they are enlarged due to the tumour then I will need to have radiotherapy to help shrink them before having an op to remove the tumour. The doctor is confident it is confined in the colon...it's actually about 10cm up from my rectum.
So that's my story. I'm not sure what to expect next. This was the first time I have ever stayed in hospital apart from having a baby years ago. I'm healthy other than this curve ball ! I'm a 53 year old woman.
Thanks for listening to my saga
Hi Dancingdoll67 and a warm welcome from me. How scary for you - bowels can be so messy can’t they? The good news is that Bowel cancer is very treatable nowadays and no spread is good news too. Having radiotherapy before surgery is very common for rectal cancer and can have a good effect on shrinking the tumour - mine shrank by 75%. I was 53 when diagnosed and my tumour was 9cm up from my rectum so we’re sounding very similar and I’m currently 4 years and 4 months clear.
My main advice would be to stay away from google - it’s out of date and downright scary in places. Break your treatment into stages and cross each bridge if and when you get to it.
Ive attached a link to a booklet which has some information about the various treatments etc. If you click on my name then you can see what treatment I had although I did have a few setbacks (or ‘made a meal of it’ as my consultant liked to say) along the way so I’m maybe not the best example.
bowelcancerorguk.s3.amazonaws.com/.../YourPathway_BowelCancerUK.pdf
There will be a tough few months ahead but we’re all happy to help you through it. Feel free to ask anything you want - there is nothing too daft or embarrassing - on here and we’re all at different stages of treatment so happy to share experiences and offer advice.
Take care
Karen x
Hi all it's been a while and lots of water under lots of bridges. So after originally being diagnosed in April 21 I started 4 sessions of chemo in May 21. Oxaliplatin and capecetibine.
Hate needles so was scared when first went in but was ok. Tingling after the sessions for about 7 days was horrible but manageable. My dose was reduced by 20% after the second session due to my throat going numb immediately after the session with a lot of weakness and I was unsteady on my feet. The other 2 sessions went well. The treatment reduced the bulk of the tumour which was originally about 4 cm.
Then after a short break I had 25 daily radiotherapy sessions which went fine. The drinking lots of water can be tricky to get right but you get there in the end and I also had capecetibine tablets too with a break every weekend. So now that's all done I had a CT scan and MRI last week so am just waiting for the results.
Im proud of how far I have come. Continued to work full time albeit from home and the only sick time I took was the day after my intravenous chemo each time.
Now just the waiting game for the results to see what is next for me.
Best of luck to all going through this..we will get there guys
Regards Karen
Hi Dancingdoll67 and lovely to hear from you again. You sound so much like me! I carried on working 5 hours a day in an office and just missed 1 day when my arm was too sore - it helped distract me and made me feel a bit more ‘normal’.
You are right to feel proud and hopefully your results will be back soon and reflect all your hard work
Take care and keep us posted
Karen x
Well done Dancingdoll67
Thats an amazing achievement to keep working full time whilst having treatment. Tremendous effort !
Hope the next part goes well too .
So lovely of you to pop in and update .
Take care ,
Court
Helpline Number 0808 808 0000
Your doing amazing, it’s wonderful to hear such inspirational talk, it comforts each and everyone of us going through our journeys. Love Louise xxxx
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