I have a diagnosis of T4 N2 Rectal cancer and will be starting Chemoradiation next week for 5 weeks, 5 days a week.
I'm very worried about when I will need to ask for transport to and from treatment as I live over an hour from the hospital. I would like to drive myself for as long as possible, but I'm worried that I may wake up one morning unable to do so and end up missing my treatment appointment.
Can anyone give me a rough estimate of how soon they became too tired to concentrate on driving and how suddenly it came on (i.e. during the 2nd week, alright one day, but not the next or it slowly got worse over 2 or 3 days).
Many thanks everyone in advance
Hi
Just want to welcome you to the forum. I can’t actually answer your question but I will tag in Kareno62 and hopefully others too will pop on and give valuable insight from their experience.
I can see your dilemma though ! Wanting to remain independent but not wanting to get caught out ! Hopefully others will assist you in investigating that further.
Hope it all goes smoothly.
take care ,
Court
Helpline Number 0808 808 0000
Hi and a warm welcome to the board from me. I found the 5 weeks treatment fine to be honest. It’s a few years ago now but I don’t remember any excessive fatigue. I carried on working through my treatment so asked for early morning appointments and went into work straight after. This suited me and also meant there was less of a backlog - finding out that there’s a 45 minute delay and you need to wait with a full bladder for treatment is not good!
The chemo is a lowish doseage and is used to enhance the radiotherapy effect. I started to get tingly feet towards the end so make sure you keep them well moisturised. The radiographers will probably give you a cream to use on the area being treated if you start to get any soreness and I used it daily just in case. You may experience a bit of diarrhoea but again I was given immodium and diarolyte just in case. They will keep a close eye on you throughout.
A backup option might be to use hospital transport if it’s available but I was warned that I’d be picked up a couple of hours before my appointment and then might have to wait a couple of hours afterwards. The actual treatment only takes about 10 minutes so I didn’t bother.
Hope it goes well
Take care
Karen x
I can tell you my experience, although I know it was well outside the mainstream. I actually went through chemoradiotherapy quite recently. Although it did make me tired I managed to carry on working right through it, and I could have driven there and back every day if I wanted to. In fact mostly I went by Uber as it was into central London, congestion charge, expensive parking and the like.
HiSaxylady, I did 5 weeks like yourself, drove myself to the station and commuted up to Guys each time. I never felt I wasn't fit enough to do it. I hope that you find the same and wish you all the best for your treatment. John
Many thanks John, that's really good to know
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