Recovering from stage 1 colorectal cancer -48 year old man

FormerMember
FormerMember
  • 14 replies
  • 166 subscribers
  • 2118 views

Hello

I am a 48 year old otherwise very healthy man. Had my tonsils out at 8 and an operation on a broken foot at 18. Otherwise no other hospital treatments or admissions other than a dodgy mole removed a few years ago which was not cancerous.

I was diagnosed 13 January 2021 at a colonoscopy, had CT scan 2 days later then a week after colonoscopy met with advanced practitioner nurse and consultant who confirmed a very early stage tumour. Had a high anterior resection of bowel on 9 February and discharged on 15 February. Told by advanced practitioner nurse on Friday 26 February that no indications of any spread the tumour was “encapsulated” in the bowel wall and removed entirely and intact. T2N0M0. Told by my consultant on Wednesday 3 March that it is not a hereditary cancer so relieved for my 45 year old brother. Told it was a run of the mill random cancer not aggressive just I was unlucky at 48 but cancer doesn’t discriminate who it affects.

I am doing well physically. My bowel is normalising well and haven’t had many issues since the operation. Just a few days going to the toilet frequently and in general going to the toilet more often but no pain or real discomfort.

It has been a big shock mentally. I have eaten a very careful diet for years. Gave up smoking at 26 and gave up alcohol totally in 2018 ( never been a problematic drinker I just came to the conclusion alcohol did nothing for me). I swim regularly, walk regularly, I had a personal trainer at the gym until covid hit and always been slim. People have always complimented me on my good health and fitness so it’s been a huge bang to be told I had cancer. 

I have had two serious gastrointestinal “incidents”. I had salmonella poisoning in Morocco about 14 years ago which made me very poorly but quickly went with antibiotics and then in October 2018 I went to Tunisia and returned with Shigella Sonnei dysentery. I was very poorly with this. It took 3 weeks to get a diagnosis in which time I’d lost an enormous amount of weight and was very dehydrated and at times delirious. Once diagnosed I had antibiotics which again quickly shifted the main symptoms but I had a good 6 months of waiting for my bowel to normalise - it never fully normalised and I had IBS symptoms on and off. By December 2020 I felt very constipated but put it down to lack of swimming as covid closed the pools down. When I saw blood on my stools I was alarmed and following nhs direct guidelines after 3 weeks I called my GP but wanted a further week as he was on holiday. A week later I saw a trainee GP who possibly saved my life by referring me for a colonoscopy tho he said I think you’re constipated I don’t think it’s anything serious but you don’t have piles and I can’t explain the blood. 

I always thought the shigella sonnei dysentery had been a serious health episode but nobody can really answer if this may have been the precursor to my cancer and I’ll possibly never know but Shigella certainly creates a lot of toxins and causes cell damage in the colon. 

i am still off work, luckily I have a job that gives 6 months full pay 6 months half pay for sickness. I have experienced some waves of extreme fatigue following my discharge from hospital and some kind of mental shocks. For example yesterday I went for a walk for the first time to a place I regularly walk and I keep thinking this is surreal have I know “had cancer” and two months later I’m just doing the normal things I do. Is that actually possible. 

other times I worry at the 90% survival at the 5 year point statistic and try to keep in mind to do the things I want to do and not to waste time. Life is a limited times are for everybody. It has increased my spiritual awareness a lot and in many ways. People have been praying for me all over the place Christians and Muslims (I only seem to know Christians and Muslims and people with no religion for some reason). I actually feel like I have felt the strength of the prayers which is weird and a but hocus pocus for me but there you go that’s what I feel. 

i had a friend who died of breast cancer aged 40 we were students together and the same age but up until now I knew very very little about cancer I didn’t bother to know or learn and if someone got cancer I just thought it was sad but then didn’t think more. Now it seems to be everywhere and affecting everyone. My main health concern before cancer was really anxiety which I had mostly under control. Those concerns seem kind of ridiculous now. 

I am single and never married and have no children. I love to travel and if covid permits I will go to Norway in August, Malta in September and to my beloved Québec in October before the fall weather gets too cold there. I just pray cancer cannot take this from me. I even feel very spoiled being able to make these plans. I’ve had such a spoilt life when I think of it always felt very entitled to travel like it was my right but I know so many never get these opportunities. 

i just remember when the consultant told me for sure it was cancer I was so relieved it had not spread to another site I was worried beyond belief convincing myself it was in my lungs and even in my mouth. He said the bad news is you have a cancer the good news is everything after. In that moment I just said I want to travel to Québec again in this life which seems a ridiculous thing to say. The advanced practitioner nurse said well you can’t right now because there are no flights and we all laughed. 

ive written loads now and don’t want to get boring so will stop by just saying I’m so grateful to the NHS, to my GP surgery and local hospital and to Macmillan. I feel totally bowled over by how well I’ve been treated and all for “free” it really saddens me to read Americans posting on a Facebook group I joined who have to factor in the costs of certain treatments etc. 

  • Hi and welcome to the board. I could relate to your post in so many ways including saying something ridiculous which in my case was ‘do I have to bring my own towel?!’ I remember my feelings being all over the place - I told my friend I was going to treat it like a minor illness, have the treatment and get on with life. She warned me that every advert on telly would be for cancer support and it would be in and out of my mind all day every day - and she was right.

    You are still in the early stages of recovery and maybe feeling a little shell shocked? It’s a great feeling that you’re cancer free but then a strange let down that there’s no more appointments and people looking after you and you’re back into ‘normal’ life until your next check up? There’s the feeling that you need to make the most of everything, guilt that others haven’t been as lucky as you, relief that it’s not heredity, frustration that you still had cancer despite your healthy life style, grateful for all the prayers that have been said for you, the worry before every scan and then the relief that it’s still clear............ makes your head spin doesn’t it?

    The survival rate for stage 1 is very good but please don’t focus on statistics - you’re an individual, online stats are out of date and not to be relied on. I’ve attached a document that has helped a lot of people moving on with cancer - if you don’t feel it’s relevant at the moment then have a read later.

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    Nice to hear from you and please keep posting to let us know how you’re doing

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Dear Jean Claude

    So pleased to hear the surgery went well.  I was 56 when I was diagnosed 'out of the blue.'  Surgery a month later - and like you had a 'run of the mill' tumour.  My wife & me had retired early to travel, we've been alot more disrupted by Covid than cancer.  The op was the end of Jan '18, by June '18 I'd been on football trips to Rome & Kiev (not very successful - Liverpool lost)  Later that year we went on an extended trip to SE Asia.  In 2019 I was back skiing in France and went on an incredible trip to S. America & Antarctica.   The football was better that year - we boiled alive in Estadio Metropolitano watching Liverpool win number 6, later in the year we went to Central America and a road trip from Moscow to St Petersburg.   

    We had good plans for 2020.  We returned from skiing in March to the mess that was the government response to Covid.  It was also the end of retirement for my wife - she's a doctor.

    If you planned it before you can do it now.  Make sure you tell your insurance company about the surgery - it added nothing to my insurance because surgery was the end of treatment.   Yes, I wish it had never happened but life is still good, go and live it and enjoy.

    YNWA

    Mike

  • Hi Jean Claude, I was picked up on the bowel screening. I do think they should lower the age. Like you it is the mental effects. I had no symptoms. So glad for you it was caught quickly. Hope life gets back to normal soon.xx

  • Hi Karen62, was interested in what you said about statistics. I tend to dwell on this a bit, I find that what you and Court and Phoebe 21 are very knowledgeable. So thank you.

  • Hi . Glad to be of help! Thinking logically things like the 5 year survival are already out of date as they relate to people who were treated 5 years ago and medical practice and knowledge improves so quickly nowadays there are always new procedures and practices being put in place. When my surgeon quoted me the fatality rate for my operation he said it included anyone who had died within whatever length of time after the op ‘for whatever reason’ so if they had died of an unrelated heart attack for example, it would be included in the fatality figures! If the same principal applied to survival rates then it would include people dying from old age and other conditions unrelated to the cancer which would again distort the figures.

    Thats my take on it anyway. Everyone worries about a reoccurrence but I try to tell myself that the worry will not change anything - all it does is prevents you enjoying the life and health that you have at the moment. Each clear checkup will take you further along the path away from your diagnosis and treatment so try not to keep looking back over your shoulder and look forward at the lovely spring flowers coming up and the easing of lockdown.

    Sending you a big virtual hug

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Karen , thank you, my chemo nurse is back and I spoke to her about my live mri they want me to have. They think it is fatty liver. They don’t seem to think you get worried. I might not get it for a week or two. I wish they would call me nearer the time. I read the link you sent Jean Claude. I can relate to it. I’m sending you back big virtual hugs x

  • Hi . Glad the link helped. I pinched it from The Highlander who is the ‘Court’ of the Moving on from Cancer board. Do you ever read any of the posts on there?

    https://community.macmillan.org.uk/cancer_experiences/life-after-cancer-forum

    x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Karen62, no I haven’t read post on the moving on from cancer, I will have a read. Thank you Karen xx

  • LaughingLaughing. Just wait until I start doing my bit for the tourist board ! Warm welcome awaits you all !

    And if you were allowed to come today we could offer sunshine ! 
    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to Stwhitm

    Hi stwhitm

    You are an inspiration. 

    I have tried to book a break for next year but cannot get insurance,  any advice?