Total pelvic exenteration for rectal/anal cancer

Hi Fortis

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/new-here-say-hello/203540/expectations-when-going-home-after-total-pelvic-exenteration-surgery

 I have included a previous thread you might find helpful . Hopefully others will pop on and share however guitarman1959 has been incredibly helpful to previous members to prepare for surgery . I have tagged him in and if he is free he will pop on and assist you 

Reducing some of the fear is really important and having insight from others really helps .

You are incredibly young to face this but we are here to help you .

Take care ,

Court 

Thank you for taking your time out and helping me.  And yes i also sent him a text, hopefully he can help me too. 

Hi ,

I will tag in  , Cara1 and dankel82 . As well as they have all had some experience of relatives or themselves .

Take care ,

Court 

Thank you for your help

Hi Court,

I messaged Fortis. I hoped I helped set his mind at rest a bit.

Thanks for mentioning me to him.

guitarman1959

Such a help to this forum . One of life’s givers . Thank you .

Court 

Hi Fortis 

I have messaged you 

Hi Fortis 

I can’t seem to private message you. 
I’m sorry your having to go through this at such a young age but I will tell you about my Dad. 
My Dad had a TPE over 2 years ago now and he’s doing brilliant back to his normal life and everything he used to do. 
It is a massive operation but it can save your life. After the operation it is tough and my Dad did feel very down after it and it does take it out of you and the recovery is long but you do get there eventually and you will get back to everything you used to be able to do. My Dad was back playing golf after a few months. 
It’s very daunting and for you to go through this at such a young age and must be terrifying for you but you will get through it guitarman gives some great advice and he is living his life to the full and it doesn’t stop him. Have they give you a date for surgery? Good luck with it all but least you will be cancer free. Danni 

Hi there,

I have just joined so am new to this.

I had a the TPE operation at the end of January for a colorectal tumour which had returned following TEMS surgery last summer. I didn’t really have much time to think about things as my operation was pushed through very quickly at St Marks. So really two weeks before the operation I had never even heard of TPE. After an 11 hour operation I spent 3 weeks in hospital and am now continuing to recover at home, the first week and half in hospital was spent learning to walk again. (My sciatic nerve was damaged during surgery). I’m managing ok with the bags but my biggest problem is the sciatic pain which could take months to repair itself.

Have you had the op now? I’m happy to share my experience.

Thanks

Welcome to the forum Mptcranley. Gosh that was very sudden for you . Sounds as though you are coping well despite quite invasive surgery .

That was so thoughtful of you to offer to share your experiences.

Take care and keep on healing .

Court