Hello

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Hi,

I'm new to this forum, so not sure how this works.

I had an emergency right-sided hemilectomy in October 2019.  In January 2020 I started chemotherapy and finished in July 2020.  It hasn't been an easy journey.  There are days when I struggle to cope with all that has happened, and I just wonder whether others feel the same way.....stupid question I know.

I'm undergoing further tests to see if I have an underlying Cancer and I'm scared.  

I live on my own....family live 310 miles away . I moved to my current home 3 months prior to my surgery,  so didn't have an opportunity to build up a network of friends.

I have gone  through  this on my own.

I hope that you will not think that I'm intruding on the forum, if I am please let me know.

Polly3 

  • FormerMember
    FormerMember

    Welcome to the forum Polly3. There will be lots of people pop up to chat soon, they are a great bunch and have helped me so much over the last 10 months. 
    I also had a right hemicolectomy last April and have had chemo and radiation which unfortunately didn’t work. At the moment I am having Immunotherapy for which I feel very fortunate to be given. 
    Chatting with people on here, sharing pictures and stories about everyday things will hopefully help you on your journey like it has me. There is a huge amount of information from people that have been through similar things, so much better and safer to listen to their stories than to google! 
    Glad you have reached out and you are definitely in the right place!

    Take care and speak soon! 

  • FormerMember
    FormerMember in reply to FormerMember

    Oh I forgot to mention if you click on peoples user names you can read their background stories if they have completed one! Mine is an essay but I do like to talk a lot! Joy

  • Hi and a warm welcome to the board from me. Well done on getting through a House move and cancer treatment. You’ve obviously managed to draw on a great inner strength  so give yourself a big pat on the back for that. It’s quite normal to feel a bit down when treatment finishes - you suddenly realise that, although it’s great that you’ve no more hospital visits and cannula to endure, you also feel a bit lost and like a comfort blanket has been taken away. I’m going to attach a link to a paper that has helped a lot of people - if tou don’t feel it helps you now, it’s worth saving and reading at a later date.

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf.

    I moved house 6 months ago and fully understand how difficult it is under the current climate to do anything but walk but hopefully you may be able to join local groups and societies once restrictions start to lift.

    Lastly - you certainly are not intruding! You are very welcome to post about anything you like or join in the monthly catch up thread just to see what people have been up to and whose eating the most cake (probably me!)

    I hope your current tests go well - please keep us posted

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • When I had my first CT scan prior to chemo treatment and both scans came back normal.  When I had my second scan after treatment was finished the scan results showed that I have lesions in my lymph nodes, and in my lung not sure what this means. Has anyone else had a similar experience.

  • Hi 

    The lung is notorious for nodules . Some are totally benign and others indicate a spread . To put that into context my mum had three in one lung . Two have remained there ever since and never grown but one they were watching from 2 mm grew to 8 mm over a two year period . At that point they gave her a PET scan to see if there was any uptake . There was and they removed it before it had a chance to grow . The surgery was very straightforward and she was home two days later .

    Infections can also cause small lung nodules so they often do a watchful waiting approach where they do regular scans just to keep an eye on them and some do in fact go away . 
    The lymph nodes can again be the lymph doing it’s job or they like to eliminate disease so the PET scan can also assist bro get a better understanding. 
    It comes up quite a lot on the forums .

    The liver sometimes has cysts that need to be eliminated. But it’s in taking extra good care that they can attend to anything quickly . But it’s harsh on the nerves .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thank you for your reply.

  • Hi Polly3, I can comment on feelings, I’ve had very good results with my chemo radiation, but I keep getting low and anxious. These time we are living in are not exactly to have any illness in let alone cancer. So wishing you luck and sending hugsxxx