Difficulty in fooing

FormerMember
FormerMember
  • 3 replies
  • 178 subscribers
  • 824 views

Hi, my husband who had been very fit and healthy was diagnosed with prostate cancer in January 2018. Following radiation therapy we were able to go on a month’s cruise to America and Canada In a September and had a great time. On our return he had a bowel screening and it was discovered he had cancer of the caecum and had an operation in December followed by chemotherapy in 2019. Imagine our horror when we found out on Christmas Eve 2020 that he has incurable bowel cancer and once again he is undergoing chemotherapy. This time is different though as he is really sick and unable to eat and is having great difficulty in sleeping. My problem is that I have severe asthma and Bronchiectasis coupled with secondary adrenal insufficiency which means my  body does not produce any cortisol to deal with stress, and I am having a lot of it at the moment!  How do I look after him and keep going myself?

  • Hi 

    Welcome to the forum . That was a very rough way to find out about your husband’s condition on Christmas Eve . 
    I guess everyone is different when it comes to coping but I used a very simple technique. A patient told me to keep my mind where my body was . Not allowing it to wander off to worst case scenarios that were not actually happening at that point in time . Accept that they have a difficult diagnosis and whilst it is incurable it is very much treatable. That in itself can open up new treatments. I also gave myself time to confront my fears but only for a limited period of time . Also time to escape , go for a walk , a coffee . I found my GP incredible at the beginning. He gave me help to allow me time to strengthen .

    We also stayed connected to life . Did projects and planned events for the end of chemo etc . Joining here was also a source of strength to me . Not only did I get informed about options for treatment but I also engaged with people going through the same and I used some of what they shared to get a handle on this .

    I also found some hope in that a sub group of patients actually do well despite a difficult diagnosis. I wanted to know more about that .

    You have your own health needs and that matters . I am not sure what exactly would work for you but hope that by reading what others do might give you some ideas . 
    Your husband sounds as though he is having a rough ride on chemo and that is tough to watch . My mum was the same and it took us time to get the balance on what we should be reporting to the oncologist. The second year she had her dose reduced and what a difference that made to her side effects so don’t be afraid to contact his team .

    We have a helpline here too. 0808 808 0000. They would be happy to chat through any aspect of this to help you get a handle on the situation .There is also a carers group if that is of any interest to you .

    Take care and hope we can make this all a bit easier for you .

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Thanks ..I really appreciate your support. Sorry about the type..it should read difficult in coping!

  • No problem at all . We are here for you .

    Court 

    Helpline Number 0808 808 0000