Oxaliplatin & capcetabine

Thank you so much for the advice, glad i joined!

Best of luck, its tough going so support from others who understand is great

Thank you, its tough but can't go anywhere or do anything because of covid so lets get our head down & keep going!

Thats great news for you! well done for getting through it!

Thanks so much for your advice, thats really helpful!

Hi, Im only one cycle in front of you, i'm having 8 cycles which feels like a marathon! Its tough at the beginning isn't it when its all stretching ahead of you; and the anxiety of covid! I'm trying not to look too far ahead, its hard though when your not feeling well. I'm on day 7 of 2nd cycle; feel better today but it appears days 1-6 are pretty rubbish. I suppose once we've had a few cycles we will be more prepared; its scarey stuff dealing with unpredictable symptoms take care keep going xx

Hi Rosiegirl . Hope you are doing better today . I have just finished my 3rd cycle of Capox .  First and second cycle  pre Christmas I was absolutely frozen, quite a lot of pain in the infusion arm and around the cannula.   Bad Peripheral neuropathy .. so could not touch anything for 5/6 days .All the doors handles in my house were wearing socks permanently ;-)  Felt dreadful - zero energy and absolutely no ability to go outside as I could not handle the cold.  Following a discussion with the oncologist  he reduced the oxaliplatin dose by 20% . It made an incredible difference . Still felt the cold - but the hand tingling only lasted 24 hours .  For the first 5/6 days I still needed to sleep in the afternoon - but thereafter so , so much better. 

It also helped a lot to ensure that you were warm going into your appointment  and to use a heat pad on the arm where  you are getting the infusion before  and during. 

Hope things get better for you. 

Hi Nelly B I had chemo tablets with the radiation after first scams in December they thought most of the cancer had gone. Had to have another scan on the 6 of January went last 13 and it was gone. They will have me back in 3 months. I just want to ask my doctor about diet to try and keep as well as I can. Love & kindness to us all x

I'm on my third cycle of the same, I've had similar symptoms plus laryngeal spasm after each infusion, so from an initial 2hr infusion my 3rd was over 4 hours. But things do improve slowly. In my chemotherapy free week I feel almost normal. The reset when I start a new cycle is unpleasant, but I  take comfort from the knowledge that thungs do improve. Unfortunately, because of COVID19 delays I'm having 4 cycles before my review of progress, so it will be longer than expected before i find out if the treatment is helping.

But to look on the positive side, nearly every day one to day 21 of the cycle has been a little better than the day before

Thank you for your response, i took the advice of buying cotton gloves & wearing them at all times in the house, even for sleeping keeps hands at a constant temperaturekeep going! Sending good vibes!