Hello everyone!
I was diagnosed with stage 4 colorectal cancer with liver and lung mets in July last year. I had stoma surgery, 12 weeks of Capox, 25 days of radiotherapy, liver resection, bowel surgery, and I'm about to start my final 12 weeks of chemo. Treatment has gone really well and my histology shows no living cancer cells left!
Two months ago I had an anterior resection and my colostomy was converted to an ileostomy. Now, on the whole I'm getting on really well with Kylie Ostomy and she's outputting absolutely fine. Sometimes liquid, usually porridge, but all good.
However, these last two months I have been having the most unpleasant pain in my abdomen. I THINK it might be trapped wind, but I've never experienced anything like it! It can appear anywhere in my torso, front or back, and it'll make moving so unpleasant that I can't think of anything else. It's not the worst pain I've ever experienced but it's really unpleasant! Does that make sense?
It's making it really hard to work (I'm an oil painter and art tutor, so love my work!). This is the longest I've gone without painting and I'm going crazy.
Does anyone with ileostomy experience have any advice to deal with this? I'd be so very grateful!
