Hi I have had stoma for 5 years due to collerectal cancer. Had parastomall hernia repair with no problems 2 yrs ago. Today I noticed a new small hole just a little way of stoma. Has anyone else had this. Have got home visit from stoma nurse on 7th July. But would just like to know if anyone else has had this. Thanks
Hi Parsia
I’m sorry you haven’t received an answer yet to your post-it may be that no-one has experienced the same issue. My reply will bump your post to the top of the discussions again.
I’ve got a permanent colostomy myself, but I haven’t experienced a parastomal hernia so I don’t know if the hole you have found is in any way connected to the repair. Is the hole in the skin next to the stoma? Is it painful or weeping? I appreciate that you have a visit from the stoma nurse coming up, but if you feel this should be checked out this weekend, please phone nhs 111 to get some advice.
Sarah xx
Hi my gp called for district nurse to visit. She came this morning. Problem was stoma had retracted due to constipation and shrinkage caused a gap. Stoma is now back where it should be and hole disappeared. So just waiting for stoma review on Tuesday. Thank you x
Hi Parsia
That's very good news, so I’m glad you’ve got this sorted now. It will be good for you to have the stoma nurse review, but I’m pleased it was a straightforward reason for you and hope things will be back to normal now.
Sarah xx
Absolutely it is. I know my colostomy can retract and expand, sometimes accompanied by some discomfort, but I am on codeine medication which can cause constipation and make it harder to pass output.
Getting a reason for something happening gives us reassurance that there is nothing else untoward going on.
Sarah xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007