Chemo and Radiotherapy help

  • 2 replies
  • 115 subscribers
  • 81 views

Hello 

Am 52 years old lady I was diagnosed on 02/10/2025 with low rectal cancer locally advanced with obturator node, iliac artery node and internal node involvement. Preoperative treatment in the form of chemo/radiotherapy is recommend before surgery. I have a oncology appointment on the 28 Oct where treatment plan will be discussed. I was wondering if anyone can tell me what happens on this appointment and how long after is treatment started. I have been reading up about the chemo and radiotherapy treatment and it scares me of all the side effects. Would put me at ease if anyone can let me know what to expect and what I can do to prepare for this treatment. Your help and support will be appreciated thank you Charlie.

  • Hi  and a warm welcome to the board. Chemo radiotherapy is often used to treat rectal tumours and can be very successful at shrinking the tumour and zapping nodes. 
    At your appointment they will discuss the treatment and tell you what to expect. The radiotherapy is usually daily Monday-Friday with a low dose of chemo tablets to be taken alongside as it enhances the effect of the radiotherapy. I’ve attached a link to a post about radiotherapy that we did a while ago which may help?

    https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/new-here-say-hello/227598/radiotherapy-care-top-tips

    How quickly the treatment starts may depend from hospital to hospital but I would have thought within a couple of weeks? As I said above, the capecitabine chemo tablets are a low dosage so you’re unlikely to get the side effects that you would get with ‘full’ chemo like capox. 
    I found it to very doable and continued working at my part-time office job throughout. Others have found that they suffered from fatigue which increased during the treatment. Diarrhoea can be a side effect and also sore skin around the area being treated. You will be given creams to use around any sore areas and also maybe loperamide to counter any bowel issues. I found the radiographers to be really helpful and always asking if I had any issues.

    Its hard to prepare as everyone can have different side effects and experiences but you could make sure you have nice soft toilet paper, food in the freezer in case you’re late home after machine delays, and some nice nourishing cream for your hands and feet as they can go a bit tingly from the tablets.

    Hope this helps

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hello Karen

    Thank you for your detailed reply, it was so helpful. I also read your profile and how amazing you beat it and are all clear well done this gives me hope and am so pleased heartfelt thanks. Heart️