I can't say it.

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At the beginning of February I found out that I had a blockage in my large bowel. By the end of February I'd had surgery which was successful. All the mass had been removed. It was malignant. A few months later I started chemo, just in case. CAPOX made me rather poorly so I stopped taking the tablets. I was told to go to MAU to get checked out. To cut this short, blood tests indicated that I'd got a blood clot. A chest scan didn't find a clot but showed that the cancer had spread. Another scan of tummy area found the clot and more cancer cells.

I know what this means and I've started a different chemo. 

I've found that I can't say that "I've got cancer"

I can explain what's happened but it feels wrong to say that "I've got cancer".

Sorry for whittering on.

  • Den64,

    Not at all.

    My friends were all wary of using the word "Cancer" in front of me until I told them it wasn't a problem. It's a superstitious word where some people think that by saying it will attract bad luck. I used to be doom and gloom before I was diagnosed and treated, having lost a few friends too soon. If they had been diagnosed now I am quite sure they would still be with us today. I now know that behind the scenes some clever people are making good progress in refining treatments and advancing technology and these advances will continue at a pace. Mine was sorted out 3 1/2 years ago yet when I read these pages I feel somewhat out of touch with recent treatments. More and more people are being diagnosed early and treated quickly.

    Dulac

  • Snap!

    I was diagnosed with Stg3 colon cancer last February. I’ve had an op and chemo and we shall see what happens.  
    I’m no shrinking violet, but during those early days I couldn’t say the word. When I tried to, it was a race between getting the word out and bursting into tears!

    Id tell myself “it’s just a word, a sound, get it out” but it isn’t is it.  It has so much more attached to it; your fears, your plans for the future, the fragility of life. 

    I’m about a year on from the end of my chemo (Capox is horrible ) and I can use the word in a general sense but when I’m referring to myself, I still struggle. 

    All the best, Paul

  • Thank you for your reply wingsuit.

    I was diagnosed with colon cancer early February had surgery 27th February. 

    I'm just starting my journey. Started with Capox but couldn't cope with it. Had 2 sessions of FOLFOX, it knocks me about a bit.

    When i think about saying I have cancer it feels totally unreal. I'd sound like a total drama queen. 

  • You’re definitely not a drama queen, it is hard.

    Recently my work wanted me to take on extra responsibilities in the U.K. AND Nordic countries. The role is interesting but it will be a poisoned chalice for whoever is stupid enough to “volunteer “. They were quite pushy and I eventually sent them a photo of my staging after the hemicolectomy and biopsy of the lymph nodes.  I don’t want to waste time working round Europe.  
    I have a folder with all the communications with the hospital where this letter was.  I couldn’t find it initially.  I had buried it at the back of a wardrobe in the spare room under old blankets!  Even lifting the folder out was hard. I then googled (I know, I know..) my staging again in case I had got the 5yr survival wrong or maybe it had changed ! 
    The whole situation that we find ourselves in is hard.  If you want to and can use the C word then do not think you are a drama queen.  We all here know that you, and anyone in our situation, isn’t.

    all the best

    Paul

  • Morning Wingsuit

    I'm sorry to see that you've got a life expectancy. Pensive 

    I don't know what the future holds for me and at the moment I'm not going to ask. It's strange enough having to wear gloves to get anything out of the freezer. 

          Best wishes ,Janette.

  • I’m not bothered about it anymore. Just living my life better than I’ve done before!  
    Im just back from Brazil! Shame it took this to make me do these things.Rofl

    So you’ve got cold touch too?  I had it pretty bad and ended up buying heated gloves.   Between the cold touch and first bite, it’s not easy. 

  • WOW Brazil! I can't manage Tesco atm Sweat smile

    When i had my surgery, they said they'd got it all out. To say I was a happy bunny would be an  understatement.

    When the CAPOX didn't go too well,it was suggested I should go to MAU to get checked over. The blood showed that I'd got a blood clot. When they went looking for that they found that the cancer had spread. The only question I asked was can it be treated or just managed. He said it can't be cured.