Recurrance

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Diagnosed in march 2023 and had a resection. All going well! Just had my 2 year scan in March and have been advised to go for a colonoscopy as there appears to be some slight thickening of the anastomosis join. Everything else in the scan was clear, bloods are normal and CEA remains at 0.6. I obviously googled and am now petrified. Anyone else had this?

  • Hi, can't directly help, but it may just be a slight narrowing of the anastomosis. Fingers crossed for you, the rest sounds good. The colonoscopy is the best diagnostic for bowels. 

  • There's are other explanations. The colonoscopy and possible biopsies will give you the best answer.

    Until then, try to keep your mind off it. Our imaginations can conjure up the worst things and rarely goes down a positive path. Even if it turns out to be a cancer recurrence, it is likely caught early and will be easily treated. 

  • I had resection/ hemicolectomy Jan 24. Had chemo following as lymph nodes positive. On the close surveillance since and had awful phone call last month from collorectal nurse informing me CT showed " abnormal segment of transverse colon ", and was back on cancer pathway! Plummeted into fear immediately! Had an urgent colonoscopie that week & I was terrified! End result was 'just' also thickening of anastmosis site/ inflammation! Is good they are on to it for you & as mentioned,  colonoscopie is 'gold standard ' to check any abnormal issues, so this is good is being arranged for you as will pick up anything immediately.  My bloods were also good like you. Wishing you well, let us know how you get on & take care xx

  • It’s such a rollercoaster isn’t it? I’m so glad for the surveillance they do but goodness! the waiting and the fear of the unknown is overwhelming!! Thank you so much for reminding me I’m not alone. Hope all is well with you too.

  • Thank you for your reassurance that I’m not alone in this. 

  • Thank you for your reply. I know it’s an over reaction as I know nothing really but the wait is painful. Colonoscopy is booked for May 2nd.