Hi all,
My mum Elizabeth (Liz) sadly passed away after having a very short illness. An illness she was not even aware of, though I don't know how, even to this day, how she didn't know but nor how did anyone else know either.My mum was simply brushing her teeth, yawned, and laughed about something I had said to her. Yawned and laughed at the same time when suddenly she felt a pop in her jaw, then soon after a couple of days her jaw became really swollen, painful, affecting her ears, her balance, her eye, her sinuses making it difficult for her to eat due to the pain and feeling nauseous and making her unable to drive.
Thankfully, I can drive now so I can take Mum to the Westmorland General Hospital as she started having symptoms of a possible infection within her jaw. She saw the A&E doctor who asked my mum, " Why have you waited this long you should have come to the hospital much sooner than now," and was prescribed with some antibiotics and referred for her to see a maxillofacial specialist in Lancaster. My mum didn't have to wait for a very long not at all, in fact, the next day she had a consultation via the telephone and then a face to face consultation in the next 2 days. Which surprised us all as this was with the NHS, not privately.
Anyway, she saw the Maxillofacial specialist team had an ultrasound scan of her jaw, which came back inconclusive with a sign of an infection even though she was presenting similar symptoms of an infection being present. A second appointment was arranged a week later. She finished her week's course of antibiotics and then about a day and a half later. She came into my room breathless, with a temperature, and the pain in her jaw became worse, affecting her neck and back. So I said right, I'm taking you to the Royal Lancaster Infirmary, and she was admitted into hospital with much disgust, but the reason for that is a different story. They put her on some IV antibiotics and stronger pain relief, had a CT scan of her jaw and neck, deciding whether she needed an operation, and they took some samples from the swollen area of the jaw.
Mum was in hospital for just over a week. Dad and I went in to see her during this period. Then, on Sunday, the 24th of November, dad and I went to visit her in the evening. Mum said to me that she felt a little bit better, even though she was still breathless and complaining of having a sore back. Mum did suffer with a bad back caused by repeative strain due to being a nurse for the elderly and also working on the family farm.
So when going home, dad and I felt much more at ease. But then the next morning, my dad and I received a phone call from the hospital. My mum wanted us to come in that morning to meet up with the team whom she was under, believing we've got a treatment plan in process. Maintaining positively, I told my dad to head in first, and I'll catch up with you after popping into the nearby hospital pharmacy for a few things from myself and for mum. When I reached the ward, I was met by one of the nurses who was looking after mum. I saw her bed cubicle curtains were closed, unaware of how bad things had gotten since the night before. Behind the curtains, I was met by the team, two of the maxillofacial specialists, two of the acute surgical nurses who were caring for my mum, and a palliative care nurse as well. And then I saw mum in a very weak state, struggling to catch her breath. Every breath was a fight. That bad she couldn't make a full sentence. In the early hours of the Monday morning, she started to deteriorate drastically. The maxillofacial specialist demanded the radiology team for a full body CT scan to be taken and to try and find out what on earth was going on. After the scan, the results were bloody unbelievable. They found presents of cancer in her bowel, her liver, her spleen her stomach, her lungs, wrapped around her aorta, and the swelling/solid mass measuring 7.4cm on her jaw could also have been a cancerous tumour as well. Jesus, Mary and Joseph, and the fecking wee donkey. I literally screamed the bloody place down using terrible foul words and forgetting where I was at the time, forgetting there were other patients and staff members within the ward. I was so fecking angry and I was rude towards the team, which later I apologised for that and they totally understood and said no need to apologise as you were in shock. I asked them what treatment is there for her. And they said there's nothing we can do. Your mum is far too poorly, and it's far too late for any possible treatment. All they could do was to, try and keep her as comfortable as possible during her final stage before passing away. So, on the 24th of November, the Monday morning, Dad and I arrived at the hospital between 9:00am and 10:00am and then, six hours later her lungs started to fill up with fluid, drowning internally, and then just minutes later, that was it she was gone. Both dad and I were right there with her, right there to the very end, we spoke to her the whole time whilst our hands were linked together. She passed away on Monday at 4:45 pm. Dad and I didn't leave the hospital until just after 8:00 pm or so. My dad wanted to go home, but I couldn't just leave. I didn't want to leave my mum's side because to me, it felt wrong leaving her with strangers. That's why we didn't leave till just after 8:00 pm because I was the one who drove us there and back because my dad hadn't been added as a designated driver to my motability car as I am also an amputee. And I had to make sure I was stable enough to drive us back home that night.
Still to this day, dad and I can't t believe she didn't know. Only to be diagnosed and display symptoms of cancer less than than 24 hours before passing away.
I noticed no one has replied as yet, I am so sorry to read about the loss of your mum. I just can’t imagine how quick and traumatic it must have been for you all.
I am so sorry for your loss and sending massive hugs to you and your father x x
Hello honey
I’m so very sorry for your loss, there are no words to take away the shock and pain of what has suddenly happened to you and your Dad. It’s horrendous to put it mildly.
You’re clearly in shock and that is not surprising at all.
I can’t make things any better by anything I can say but I totally can relate to the question of how your mum didn’t know…Cancer is a sneaky b*s*a*d, no question and with many cancers there are no symptoms until it’s too late to cure. In the case of your Mum sadly it was too late even to treat and that is even more shocking.
I myself was diagnosed with stage 4 Lung cancer two months ago, it has spread to my other lung, my spine and my lymph nodes and I didn’t have a clue, not in the slightest so I get it 100%. I understand your anger totally, your brain is probably pickled I know mine is.
My cancer is treatable however but only palliative to buy me time and give me sone quality of life.
I relate also to your anger, I lost my late Dad suddenly, without warning, without real reason and it totally rocks your world.
I lost my Mum to Oesophageal cancer and hers was only discovered a matter of months before she passed.
i know you won’t be ready to hear this but ill say it because its true, you will get through this, you and your Dad have each other and you’ll be strong together, this WILL get easier. You’ll never get over it but you’ll learn to live with it and without her.
Keep talking within this group as the support and advice is invaluable and worth its weight in gold.
sending lots of hugs and positive vibes, take care
jools x
Thank you. x
I am really sorry to hear all that you are currently going through. I wish you to stay as well as you can. Cancer is a b*tch.
My mum, she was completely and totally teetotal when it came to taking any illegal drugs, smoking, drinking, you name it, everything. She always had a good diet, and all meals were 100% homemade. She always looked after herself and never abused her body neither inside nor outside. She was someone who would use everything holistically.
The only thing she had trouble with was having an underactive thyroid and was prescribed hormone replacement tablets called levothyroxine, but that's it. So what the feck happened to her?
I'm so sorry for your loss.
There's never any rhyme or reason to who gets cancer and who doesn't. We're urged to eat better and live a healthy lifestyle to reduce our risk. But it's never zero risk. And plenty of people live unhealthy lifestyles and never get cancer. It's not our fault if we get cancer. And it wasn't your mother's fault either. We want to believe we can control these things but we can't. We want to believe there's order and predictability in the universe but there isn't. Maybe one day we will see the pattern and understand but not now, not today. All we can do is mourn our losses.
I write this today as I watch my mother-in-law slowly bleed out from colon cancer. There is nothing they can do for her and she will pass soon. It isn't right or fair. It just is.
I am surviving rectal cancer that came close to killing me. I work each day to find meaning in my experience. I don't know why I was spared and others weren't. All we can do is make the best of what we're given.
Give your Dad a big hug. You are both grieving and will be for a while. I'm hoping my long ramble here helped a little... if even for a moment you feel less alone.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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