My dad has been living with rectal cancer since 2022. He had radiation and oral chemo, but did not want the surgery nor infusion chemo. So after the tumor on his anus disappeared, it came back along with possible cancer in his groin from the radiation.
So here we are, he is in agonizing pain. He can't sit upright because of the tumor. He has to stand up and then sit. I fought hard to get him opioid medication, and it mostly works for pain but I've noticed that when he's on it he cannot focus and gets confused. He had trouble talking before because the chemo messed his brain up a little but he could still have lucid conversations at times. But on these pills it's like he's delirious and confused.
I have no idea what to do. I am totally overwhelmed and mostly I hate it because he just languishes.
Has anyone been in this situation before? How did you handle it? Thanks for any help.
Hi JMY75
It’s tricky with optiates . My mum was exactly the same on certain ones . Gives you quite a fright .My mum
came off hers and managed on a different pain med . Definitely speak to his Drs and see if they can reassess him . There are different ones I believe and different methods of administering them
The helpline has nurses who could advise you .
0808 808 0000
But it is quite a common problem
.
If it’s any consolation normality returned a day or so after removing them from her system .
Take care
Court
Helpline Number 0808 808 0000
Hi JMY75
Discussion with his prescribers should help them fine tune the right balance as meds can interact with each other or just trigger on there own. The route you take them can also impact.
My drug regime is adjusted about every 2 days to keep best results and minimise my delerium and nausea.
Hi
opiates can be nasty things but also sadly have their time & place.
ive been on a low dose of morphine for years due to osteoarthritis but am more concerned now bowel issues (bladder too) have developed- it’s catch 22 as opiates cause constipation fact which obviously is also a symptom of bowel cancer/diseases.
Even low slow release doses will make a new user drowsy & it’s a hard slow process adjusting with help to correct dosages so patients can still function day to day. They also react different with various other prescription drugs… reach out to the MDT for help they’ll be better than standard gps advice, who have always given it out like candy to me over the years & sadly no doubt they are partly to blame for newer issues developing.
i hope you manage to get the help your dad needs with dosages & making sure they don’t react with any other drugs he is prescribed.
by all means keep in touch- think we can message if add as friends although not figured here out fully yet!
take care & don’t be afraid to reach out asking people here various questions- it’s a very caring kind community!
love C Xx
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